The UK Biobank seems to be a useful resource as far as I can see. However, any data gathering project based self-registration through the net has...
The comment re Lyme was from an ME association and I have no view on that. The political aspects for me are more general.
Absolutely agree, but NICE has come close to changing things by debarring the 'international experts' from contributing and making use of the...
Yes but you cannot convince stupid people of what makes sense. They don't follow. And they are in the majority. I was there for thirty years! You...
I give up really. Everything is drivel now. Stakeholder is a completely inappropriate term in this context. There are people who need help and...
I am afraid, @Hutan, that this: “We have brought together experts from across the UK to work with international colleagues from the World Health...
For once I agree with @duncan. The allofus.nih.gov webpage looks like pure politics to me. I cannot see any point in PWME contributing to a...
There is a medical sense of that sort - as in so-called fatigue-fracture when the shin bone cracks after repeated use. But I think that just...
You seem to be missing the point @Snow Leopard that language is messy and complicated. In science terms of have multiple meanings in different...
This reads like someone who has read an immunology textbook but not understood it. I may be getting old but in the days when I was in immunology...
This is not the meaning of fatigue relevant to ME and I doubt you would get many doctors to agree that it is relevant.
Hydrostatic pressure in relaxed muscle should be slightly below atmospheric. That suggests to me that the pressures here are indications of muscle...
It looks like the second references really Saffron and Pheby, 2009? It may be good paper but the quote is a bit confusing.
I not that the opening blurb refers to paper by Alison Wearden and Caroline Chew-Graham. It goes on to cite: Without a diagnosis, patients can...
I get the strong impression that therapists just find it too hard to let go of the idea that they know what to advise - when nobody does. As far...
It may be. But did they tell the patients that it was? Or did they assume the patients had read Dittner? Psychotic patients in hospitals mostly...
Chris cross-checked with the UK Biobank data and found no signal.
Being in hospital is exhausting for anyone in a reasonably normal frame of mind so 60% seems a remarkably low figure, but then by definition...
I think we need to know that anti-CD38 is useful in a disease with known autoantibodies before playing with it in one that doesn't.
We did and Chris Ponting gave a useful commentary. The results were not replicated.
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