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  1. NelliePledge
    Post

    NICE ME/CFS guideline - submissions to the draft guideline consultation, December 2020

    Thank you @PhysiosforME
    Post by: NelliePledge, Dec 16, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  2. NelliePledge
    Post

    Measuring improvement and deterioration in ME/CFS (2020) Kirke

    :thumbup:Nice one @Karen Kirke
    Post by: NelliePledge, Dec 16, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. NelliePledge
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Agree @Barry the NICE guidelines manual makes it clear that different types of response will be received and that all points should be...
    Post by: NelliePledge, Dec 13, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  4. NelliePledge
    Post

    The BDS checklist as measure of illness severity: a cross-sectional cohort study...., 2020, Fink et al

    Ugh
    Post by: NelliePledge, Dec 12, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. NelliePledge
    Post

    BPS attempts at psychologizing Long Covid

    A number of posts about the Warwick University REGAIN trial of exercise and psychological support for people who have had Covid 19 have been moved...
    Post by: NelliePledge, Dec 12, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. NelliePledge
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I think a lot of us realise a change to the NICE guidelines isn’t going to of itself result in some kind of root and branch overhaul of how people...
    Post by: NelliePledge, Dec 12, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  7. NelliePledge
    Post

    U.K. trial Rehabilitation exercise and psychological support after Covid 19 infection (REGAIN) Warwick University

    Apologies if you’re already aware @PhysiosforME tagging just in case you’ve not seen
    Post by: NelliePledge, Dec 12, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  8. NelliePledge
    Post

    healthcare: Could Cognitive Behavioural Therapy Be an Effective Treatment for Long COVID and Post COVID-19 Fatigue Syndrome?... - 2020 - Vink et al

    I like the title. Hopefully some people who assume the answer is yes will read it and have their eyes opened to a different perspective.
    Post by: NelliePledge, Dec 11, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  9. NelliePledge
    Post

    ME/CFS services in the United Kingdom

    Hi @Suffolkres the link to the document doesn’t work for me
    Post by: NelliePledge, Dec 8, 2020 in forum: UK clinics and doctors
  10. NelliePledge
    Post

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Good grief how many questionnaires what’s the protocol on questionnaires. Once it is published is it out there public free access or do...
    Post by: NelliePledge, Dec 8, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. NelliePledge
    Post

    Understanding the economic impact of myalgic encephalomyelitis/chronic fatigue syndrome in Ireland: a qualitative study, 2020, Cullinan, Kindlon et al

    Well done @Tom Kindlon
    Post by: NelliePledge, Dec 7, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. NelliePledge
    Post

    ‘Girl in the Window’ From award-winning author Penny Joelson

    That would be good if someone has the patience. Not a job for me.
    Post by: NelliePledge, Dec 7, 2020 in forum: General ME/CFS news
  13. NelliePledge
    Post

    ‘Girl in the Window’ From award-winning author Penny Joelson

    Spot on. Didn’t finish it - ugh
    Post by: NelliePledge, Dec 7, 2020 in forum: General ME/CFS news
  14. NelliePledge
    Post

    ME Association (UK) Fundraising

    I think it’s a great idea to target fundraising on this project which is pretty significant to inform what happens after the new NICE guidelines...
    Post by: NelliePledge, Dec 5, 2020 in forum: Fundraising
  15. NelliePledge
    Post

    Covid-19 vaccines and vaccinations

    Like @Mithriel i found the set up at my GP surgery for the flu vaccine very well thought out and if I’m invited back there for CV19 jabs I will...
    Post by: NelliePledge, Dec 3, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  16. NelliePledge
    Post

    UK - NICE guideline on Long Covid

    Thanks to those who contributed
    Post by: NelliePledge, Dec 1, 2020 in forum: 2020 UK NICE Long Covid Guideline
  17. NelliePledge
    Post

    Closed Recruiting: Measuring the Impact of (ME/CFS) on the Patient and Family using the EQ5D and FROM-16 questionnaire

    Good idea. It would also be interesting to see some research into the effects of having to live with ME on those of us who live in single person...
    Post by: NelliePledge, Dec 1, 2020 in forum: Recruitment into current ME/CFS research studies
  18. NelliePledge
    Post

    BPS attempts at psychologizing Long Covid

    :wtf: He needs to have a word with himself.
    Post by: NelliePledge, Dec 1, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  19. NelliePledge
    Post

    Brain fog poll

    This.
    Post by: NelliePledge, Dec 1, 2020 in forum: Neurological/cognitive/vision
  20. NelliePledge
    Post

    News from Germany

    Good news
    Post by: NelliePledge, Nov 28, 2020 in forum: Regional news
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