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  1. NelliePledge
    Post

    Towards personalized assessment of fatigue perpetuating factors in patients with [CFS] using ecological momentary assessment, 2020, Knoop et al

    Why they would think doing this for 15 days just demonstrates how clueless they are before you even get to the specifics :banghead:
    Post by: NelliePledge, Nov 26, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. NelliePledge
    Post

    Bias caused by reliance on patient-reported outcome measures in non-blinded randomized trials: an in-depth look at exercise therapy for CFS, 2020,Tack

    Well done. I won’t download the full paper as I prefer to leave access to people with more brain power than me but I really appreciate your work...
    Post by: NelliePledge, Nov 25, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. NelliePledge
    Post

    UK - NICE guideline on Long Covid

    Obviously they have their set process. Given some of their stakeholders are long covid patients who will be struggling with the symptoms of the...
    Post by: NelliePledge, Nov 25, 2020 in forum: 2020 UK NICE Long Covid Guideline
  4. NelliePledge
    Post

    Possible involvement of the autonomic nervous system in cervical muscles of patients with ME/CFS, Matsui et al, 2020/1

    What % of the general population has stiffness of cervical muscles. Very common among people who work sat in front of a computer screen.
    Post by: NelliePledge, Nov 24, 2020 in forum: ME/CFS research
  5. NelliePledge
    Post

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    So if people did better when allowed to sleep undisturbed why push people into so called sleep hygiene dictating when they should and shouldn’t sleep
    Post by: NelliePledge, Nov 22, 2020 in forum: General ME/CFS news
  6. NelliePledge
    Post

    Psychodynamic Psychotherapy for Patients With Functional Somatic Disorders and the Road to Recovery, 2020, Luyten and Fonagy

    How tedious- the word salad has been tossed yet again
    Post by: NelliePledge, Nov 20, 2020 in forum: Other psychosomatic news and research
  7. NelliePledge
    Post

    International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

    This thread is no longer fully moderated.
    Post by: NelliePledge, Nov 19, 2020 in forum: News from organisations
  8. NelliePledge
    Post

    Towards personalized assessment of fatigue perpetuating factors in patients with [CFS] using ecological momentary assessment, 2020, Knoop et al

    :rofl:
    Post by: NelliePledge, Nov 18, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. NelliePledge
    Post

    How to assess if a research paper has used best-practice protocols?

    I was just concerned about pointing any ally to a website where they might find negative content about ME. Even if the U.K. SMC had useful...
    Post by: NelliePledge, Nov 18, 2020 in forum: ME/CFS research
  10. NelliePledge
    Post

    How to assess if a research paper has used best-practice protocols?

    Are the NZ SMC linked to the U.K. one?.
    Post by: NelliePledge, Nov 18, 2020 in forum: ME/CFS research
  11. NelliePledge
    Post

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    Seems to me from re reading this thread that @Sly Saint has hit the nail on the head. BACME people need tto say that they have moved on from...
    Post by: NelliePledge, Nov 18, 2020 in forum: General ME/CFS news
  12. NelliePledge
    Post

    Somatic symptom and related disorders in a tertiary paediatric hospital: prevalence, reach and complexity, 2020, Wiggins et al

    The Aussies are up to this rubbish as well then :mad:
    Post by: NelliePledge, Nov 18, 2020 in forum: Other psychosomatic news and research
  13. NelliePledge
    Post

    Post Covid-19 Syndrome naming

    Would it not be linked to hospitalisation? if you’ve been hospitalised 1&2 would apply if not and you have prolonged illness following a less...
    Post by: NelliePledge, Nov 18, 2020 in forum: Disease coding
  14. NelliePledge
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Excellent letters @Robert 1973 and @Andy thanks for your efforts.
    Post by: NelliePledge, Nov 16, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  15. NelliePledge
    Post

    Pain meds poll

    I don’t have really bad pain so I get by with paracetamol. I also take CBD at night. I have low dose pregabalin on my prescription but stopped...
    Post by: NelliePledge, Nov 13, 2020 in forum: Pain and Inflammation
  16. NelliePledge
    Post

    Sleep meds poll

    Yes I take the 1mg too
    Post by: NelliePledge, Nov 13, 2020 in forum: Drug and supplement treatments
  17. NelliePledge
    Post

    UK: The Yellow Card Scheme has been confirmed as the route to report 'adverse incidents' from GET and CBT (or has it?)

    Agree this is an excellent point @Andy. I think it makes sense to show it can be done. And I feel that MHRA are unlikely to do anything about...
    Post by: NelliePledge, Nov 13, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  18. NelliePledge
    Post

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    Ok so the the Parsons based beliefs sum up as We like the “good” patients who are happy to gaslight themselves....... I wonder if the study...
    Post by: NelliePledge, Nov 13, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  19. NelliePledge
    Post

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    So if he’s been doing this why couldn’t he sort out the PACE data that wasn’t possible due to being retired.
    Post by: NelliePledge, Nov 13, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. NelliePledge
    Post

    Sleep meds poll

    I take over the counter melatonin I buy from the USA I have to be careful with or preferably avoid anything sedating as I really get knocked out...
    Post by: NelliePledge, Nov 13, 2020 in forum: Drug and supplement treatments
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