A new paper from Maureen Hanson's group https://peerj.com/articles/4282/ Eukaryotes in the gut microbiota in myalgic encephalomyelitis/chronic...
I think it will lead to deaths as they encourage symptoms to be dismissed and ignored. We already have things slow diagnosis rates for cancer....
I think many of us here are trying to hold ourselves to standards of carefully assessing methodology and understanding results. It's not just the...
Remember patients have scientific skills and could be researchers or have been researchers before they were ill. Patients are too often dismissed...
I would think of it very differently. Not everyone can just set themselves up as s 'citizen scientist' but many patients have a lot of scientific...
I think the Chad (child health and disabilities) social work team have funding up to 23 or 25 and can fund some education they did fund some...
There is Nasai who run online lessons in the UK and have been used by some children with ME. They do live lessons and also record them in case the...
My assumption is that they are scared of their work being ripped apart by patients in the same way PACE was. But they may feel they can get away...
It could but there is no evidence for MUS no science to back it up so I think they won't go that direction. But expect them to slip in a MUS...
The bad reviews seem to be from ME patients saying ME isn't CFS and quoting Dr Hyde.
I thought one of the good things about the IoM report was they advised that a diagnosis should require 6 months fatigue but advice should be given...
I think there are also issues with the CFS services as they do not record when patients report serious deterioration from their treatments.
Is that a call for Red Panda therapy to be included in the NICE guidelines?
My wife was an OT and when she worked on a ward spend most of her time visiting patients homes with them and making sure they were safe and that...
Also OTs can be helpful for things like equipment to help people with limited mobility. For example, we had extra stair rails put in and a...
I think some of the doctors pushing Oxford would deny the neurological signs are neurological because the patient has CFS. Hence they could be...
With PACE I think it is interesting to look at recruitment where they assessed 3158 patients but only ended up with 641. Reasons for drop outs...
There were issues with the data collection. They did phone calls to collect just the primary outcomes so there were more people not reporting the...
One of the points about doing a feasibility study would be to look at measurements. But feedback from the paticipants should just be one part of...
I assume you could have "coping" CBT which tried to challenge depressive thoughts that were associated with being ill or other thoughts associate...
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