Me too. It's surprising to think of 5+ years of donations - it all blurs into a sort of ground hog day. I do wish we could opt out of the...
Support Experiences of Children and Youth with ME/CFS and Epilepsy in New Zealand Schools: A Parental Perspective, 2022, Bierre (thesis)
This bit is from the discussion, and comes after a paragraph on how parents felt that mainstream schools had not been able to be sufficiently...
It looks as though this has been supervised by Don Baker, the psychologist at Massey who has some family experience with ME/CFS. It's good to see...
Your reaction to this situation sounds entirely reasonable. It's damn difficult and I'm sad that we all have to deal with this uncertainty....
:) Not a cast-iron certainty. But, if your doctor ordered it, maybe it's on them to find somewhere for the test to be done? It's unlikely that...
Do you need the test for an insurance claim or something like that? Or is it to help you know whether you have ME/CFS or something else? If...
Threads on the preprint and final publication have been merged
Business plan for a starting NGO supporting patients suffering from ME/CFS in the Czech Republic, 2021, Homolka
It would be fantastic if OMF systematically did small but really well designed trials of the drugs that are promoted as being helpful. Those could...
Both can happen, and 'more impact on research funding than petitions and lobbying' is a pretty low bar
I'm picking that a flurry of benefit claims by people with Long Covid will do more to get post-infection syndromes some useful research attention...
There's a lot that is great in that submission, even just the fact that one was made, but also a lot that makes me want to go 'arghh!'. ANZMES is...
A Validated Scale for Assessing the Severity of Acute Infectious Mononucleosis, 2019, Jason et al There's that one where it's a bit oblique, but...
Long COVID and Post-infective Fatigue Syndrome: A Review - Wyller, Moss-Morris, Crawley, Knoop, Lloyd et al, 2022 A COFFI-fest.
It's interesting see Ben Katz in that list. From memory, he co-authored a study with Lenny Jason on a prospective study of EBV infection in...
Complement in the Initiation and Evolution of Rheumatoid Arthritis 2018 ? I've seen enough bad papers to know that what the title says is not...
Clonal IgA and IgG autoantibodies from individuals at risk for rheumatoid arthritis identify an arthritogenic strain of Subdoligranulum Chriswell...
$61,105 - 95% funded
Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022 Just a reminder...
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