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  1. Sly Saint
    Post

    AFME - Association for Myalgic Encephalomyelitis website (not Action for ME)

    It appears to be a Harley street breast clinic! contact email address for them is Email: mail@dbghosh.com might provide a clue as to who is...
    Post by: Sly Saint, Oct 31, 2019 in forum: Advocacy Action Alerts
  2. Sly Saint
    Post

    UK Parliamentary debate today - Thursday 24th January 2019

    [MEDIA] [MEDIA] [MEDIA]
    Post by: Sly Saint, Oct 31, 2019 in forum: General ME/CFS news
  3. Sly Saint
    Post

    Open Letter to the Chief Executive of Action for ME about the AfME web page on Graded Exercise Therapy

    I had forgotten that before their last statement on CBT,GET and the PACE trial last year, AfME made a previous statement in May 2017 Our Board of...
    Post by: Sly Saint, Oct 31, 2019 in forum: Open Letters and Replies
  4. Sly Saint
    Post

    AFME - Association for Myalgic Encephalomyelitis website (not Action for ME)

    thing is, years ago when I first came across it, it was the site that you were taken to for some of the links that were supposed to be to AfME. If...
    Post by: Sly Saint, Oct 31, 2019 in forum: Advocacy Action Alerts
  5. Sly Saint
    Thread

    AFME - Association for Myalgic Encephalomyelitis website (not Action for ME)

    this website https://web.archive.org/web/20190914091905/http://www.afme.org.uk/ we discussed it at the other place and some people thought it...
    Thread by: Sly Saint, Oct 30, 2019, 28 replies, in forum: Advocacy Action Alerts
  6. Sly Saint
    Post

    The IAPT Pathway for People with Long-term Physical Health Conditions and MUS. Full implementation guidance.

    Expansion Into Long Term Conditions By IAPT Is Quackery 29th October 2019 [ATTACH]...
    Post by: Sly Saint, Oct 30, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  7. Sly Saint
    Post

    Open Letter to the Chief Executive of Action for ME about the AfME web page on Graded Exercise Therapy

    yes, good work @Trish But it should not be up to individuals to point out glaringly obvious misinformation to the largest UK ME charity. that...
    Post by: Sly Saint, Oct 30, 2019 in forum: Open Letters and Replies
  8. Sly Saint
    Post

    The Hans Eysenck affair: Time to correct the scientific record (2019) David F Marks

    Was Eysenck right after all? A reassessment of the effects of psychotherapy for adult depression 2018...
    Post by: Sly Saint, Oct 30, 2019 in forum: Other psychosomatic news and research
  9. Sly Saint
    Post

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    taken from a different thread
    Post by: Sly Saint, Oct 30, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  10. Sly Saint
    Post

    David Tuller: Trial By Error: How to Avoid Ethical Review

    followed this up and received a very brief reply
    Post by: Sly Saint, Oct 30, 2019 in forum: General ME/CFS news
  11. Sly Saint
    Post

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    have been taking another look at the Wakefield MMR debacle and found this statement by the Lancet:...
    Post by: Sly Saint, Oct 29, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  12. Sly Saint
    Post

    Treatment for Gulf War Illness (GWI) with KPAX002 (methylphenidate hydrochloride + GWI nutrient formula) - Holodniy, Kaiser Aug 2019

    scihub link to full paper https://sci-hub.tw/10.1016/j.jpsychires.2019.08.003
    Post by: Sly Saint, Oct 29, 2019 in forum: 'Conditions related to ME/CFS' news and research
  13. Sly Saint
    Post

    United Kingdom: National Health Service (NHS) news

    NHS chief Simon Stevens blasts homeopathy as 'dangerous' and blames the industry for fuelling antivaxx myths...
    Post by: Sly Saint, Oct 28, 2019 in forum: News from organisations
  14. Sly Saint
    Post

    EU Petition 2019 - opportunity to lobby for funding for ME research

    not sure how this fits in: http://www.europarl.europa.eu/doceo/document/E-9-2019-002599-ASW_EN.pdf
    Post by: Sly Saint, Oct 28, 2019 in forum: Petitions
  15. Sly Saint
    Post

    Action for M.E. 2019 AGM and conference 15th October 2019

    I enjoyed @dave30th bit so much I did a transcript
    Post by: Sly Saint, Oct 28, 2019 in forum: General ME/CFS news
  16. Sly Saint
    Post

    A Life Hidden - Blog posts by Naomi Whittingham

    thank-you so much @Naomi10 for what has clearly been a huge undertaking. I hope that your words will be read by many and taken on board by those...
    Post by: Sly Saint, Oct 28, 2019 in forum: General ME/CFS news
  17. Sly Saint
    Post

    Action for M.E. 2019 AGM and conference 15th October 2019

    videos for agm now on youtube [MEDIA] [MEDIA] [eta DT around 48] [MEDIA]
    Post by: Sly Saint, Oct 28, 2019 in forum: General ME/CFS news
  18. Sly Saint
    Post

    Europe: European ME Alliance (EMEA) (also EMECC and EMERG)

    [MEDIA] http://www.investinme.org/IIMER-Newslet-191001EMERGEMECC.shtml can't find any dates.
    Post by: Sly Saint, Oct 28, 2019 in forum: News from organisations
  19. Sly Saint
    Post

    Norwich Science Festival Week - An Update on ME Research 25th October 2019

    there are a few tweets on this [MEDIA] [MEDIA]
    Post by: Sly Saint, Oct 28, 2019 in forum: General ME/CFS news
  20. Sly Saint
    Post

    A general thread on the PACE trial!

    [MEDIA]
    Post by: Sly Saint, Oct 27, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
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