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  1. Sly Saint
    Post

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    hmm [MEDIA] The Cancer Personality scandal http://blogs.discovermagazine.com/neuroskeptic/2019/02/25/cancer-personality-1/#.XS7mRrjk_CM
    Post by: Sly Saint, Jul 17, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  2. Sly Saint
    Post

    Biomedical articles on MEpedia - purposes and pitfalls

    from the above thread posted by @mango [MEDIA] eta: have the 'core principles' changed? https://www.me-pedia.org/wiki/MEpedia:About eta: this...
    Post by: Sly Saint, Jul 17, 2019 in forum: MEpedia
  3. Sly Saint
    Post

    Article - Joe Burns (cricketer) diagnosed with 'fatigue disorder' June 2019

    another similar story in Australia (didn't think it warranted a new thread) :emoji_face_palm: It goes on to talk about Ron Davis and the...
    Post by: Sly Saint, Jul 16, 2019 in forum: General ME/CFS news
  4. Sly Saint
    Post

    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    Esther Crawley https://www.s4me.info/threads/esther-crawley-what-drives-her-plus-quotes.1139/ eta: this quote was from a while ago.........maybe...
    Post by: Sly Saint, Jul 16, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. Sly Saint
    Post

    The ME Patient Foundation

    as she is one of their advisors I imagine she already has!
    Post by: Sly Saint, Jul 15, 2019 in forum: Advocacy Projects and Campaigns
  6. Sly Saint
    Post

    Conceptualizing the benefits of a group exercise program developed for those with chronic fatigue, 2019, Strassheim, Deary, Newton et al

    Well she is one of AfMEs medical advisors; clearly a good 'fit'. see this thread:...
    Post by: Sly Saint, Jul 15, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Sly Saint
    Post

    Updates on Karina Hansen

    I didn't know he was French(?)(as per article) Unfortunate turn of phrase here
    Post by: Sly Saint, Jul 15, 2019 in forum: General ME/CFS news
  8. Sly Saint
    Post

    UK House of Lords/ House of Commons Questions

    https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/756414/access-to-work-qualitative-research-with-app...
    Post by: Sly Saint, Jul 15, 2019 in forum: General ME/CFS news
  9. Sly Saint
    Post

    Thread for all minutes of the UK CFS/ME Research Collaborative [CMRC] Executive Board Meetings

    I think Crawley was the most obvious high profile elephant in the room; but the CMRC has so many skeletons in the cupboard. If I remember...
    Post by: Sly Saint, Jul 14, 2019 in forum: General ME/CFS news
  10. Sly Saint
    Post

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    another one at Bristol joining in on the LP 'gravy train' Dr Rebecca Barnes
    Post by: Sly Saint, Jul 13, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Sly Saint
    Post

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Sharpe has tweeted the link again! One response at the moment. [MEDIA]
    Post by: Sly Saint, Jul 13, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  12. Sly Saint
    Post

    UK House of Lords/ House of Commons Questions

    Hywel Williams Shadow PC Spokesperson (Work and Pensions), Shadow PC Spokesperson (Brexit), Shadow PC Spokesperson (Cabinet Office), Shadow PC...
    Post by: Sly Saint, Jul 3, 2019 in forum: General ME/CFS news
  13. Sly Saint
    Post

    K Pressin: new treatment for ME CFS(?) - video Dr Derek Enlander (25 June 2019)

    more info on this; Kutapressin now called Nexavir (it's an antiviral): Used as treatment by Dr De Meirleir, Dr Cheney,Dr Lapp, Dr Teitelbaum and...
    Post by: Sly Saint, Jul 3, 2019 in forum: Other treatments
  14. Sly Saint
    Post

    The ME Patient Foundation

    they have a 'talking' website! wasn't expecting that. my only reservation at the moment is I found this "Supporting the case for a full enquiry...
    Post by: Sly Saint, Jul 2, 2019 in forum: Advocacy Projects and Campaigns
  15. Sly Saint
    Post

    A Girl Behind Dark Glasses - Jessica Taylor-Bearman

    [MEDIA] eta: requires registering
    Post by: Sly Saint, Jul 2, 2019 in forum: General ME/CFS news
  16. Sly Saint
    Post

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Induced by Repeated Forced Swimming in Mice, 2019, Hara et al

    This trying to produce a mouse model for ME/CFS is just ludicrous. You need to know what the disease is first. So you have in another study them...
    Post by: Sly Saint, Jul 2, 2019 in forum: ME/CFS research
  17. Sly Saint
    Post

    youtuber: Have you been misled...? // What is PACE? // Medical Scandal

    liked it until the very end with the 'advert' for AfME
    Post by: Sly Saint, Jul 1, 2019 in forum: General ME/CFS news
  18. Sly Saint
    Post

    Researcher Interactions Video: Science for ME Q&A with Prof Simon Carding, Quadram Institute, June 2019

    part 2
    Post by: Sly Saint, Jul 1, 2019 in forum: ME/CFS research news
  19. Sly Saint
    Post

    Researcher Interactions Video: Science for ME Q&A with Prof Simon Carding, Quadram Institute, June 2019

    Part 1
    Post by: Sly Saint, Jul 1, 2019 in forum: ME/CFS research news
  20. Sly Saint
    Post

    Researcher Interactions Video: Science for ME Q&A with Prof Simon Carding, Quadram Institute, June 2019

    working on it
    Post by: Sly Saint, Jul 1, 2019 in forum: ME/CFS research news
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