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  1. NelliePledge
    Post

    S4ME letter to Cochrane re: proposed new Exercise for Chronic Fatigue Syndrome review and patient involvement

    I hope attendees take the opportunity to speak to her about the exercise review
    Post by: NelliePledge, Dec 18, 2019 in forum: Open Letters and Replies
  2. NelliePledge
    Post

    Blood pressure monitors and how to use them; taking a blood pressure measurement; continuous monitoring

    I’ve got a Moron as well ;) Works ok for me but..... if it seems higher than usual I do what they do in the surgery and go best of 3.
    Post by: NelliePledge, Dec 18, 2019 in forum: Monitoring and pacing
  3. NelliePledge
    Post

    Low-dose naltrexone in the treatment of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), 2019, Polo et al.

    And valcyte?
    Post by: NelliePledge, Dec 18, 2019 in forum: ME/CFS research
  4. NelliePledge
    Post

    Low-dose naltrexone in the treatment of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), 2019, Polo et al.

    Isn’t it more appropriate to simply give numbers rather than turn them into percentages 1 out of 2 gives 50% but one person who reckons they’ve...
    Post by: NelliePledge, Dec 18, 2019 in forum: ME/CFS research
  5. NelliePledge
    Post

    Genome-wide analysis identifies molecular systems and 149 genetic loci associated with income, 2019, Hill et al

    So the people working on the sequencing side of this have been told to work on this ‘stuff’ rather than on helping solve actual diseases. What a...
    Post by: NelliePledge, Dec 17, 2019 in forum: Other health news and research
  6. NelliePledge
    Post

    Junk food 'should be labelled with how long you need to exercise to burn it off'

    Right. And all excess starch/sugar is just turned to fat so it’s definitely not a simple question of reducing fat intake.
    Post by: NelliePledge, Dec 17, 2019 in forum: Other health news and research
  7. NelliePledge
    Post

    Junk food 'should be labelled with how long you need to exercise to burn it off'

    Yes definitely still indulging once in a while. When I was doing really well on cutting out processed carbs I would still eat a portion of...
    Post by: NelliePledge, Dec 17, 2019 in forum: Other health news and research
  8. NelliePledge
    Post

    Junk food 'should be labelled with how long you need to exercise to burn it off'

    In Victorian times food was adulterated with all sorts of dodgy ingredients to cut costs. https://www.bbc.co.uk/news/uk-25259505Manufacturers...
    Post by: NelliePledge, Dec 17, 2019 in forum: Other health news and research
  9. NelliePledge
    Post

    Article: My illness makes me feel like I've run a marathon after two bottles of wine - Dec 2019

    John Siddle is the ME Association press person
    Post by: NelliePledge, Dec 17, 2019 in forum: General ME/CFS news
  10. NelliePledge
    Post

    UK Parliamentary debate today - Thursday 24th January 2019

    Was trying to google to find this years debate. this debate from 1999 came up I read the opening which was by Tony Wright a well respected...
    Post by: NelliePledge, Dec 17, 2019 in forum: General ME/CFS news
  11. NelliePledge
    Post

    UK Parliamentary debate today - Thursday 24th January 2019

    John Hayes MP - interesting that ME gets a specific mention. He wasn’t one of the gang of 5 who made the request to the backbench business...
    Post by: NelliePledge, Dec 17, 2019 in forum: General ME/CFS news
  12. NelliePledge
    Post

    UK Parliamentary debate today - Thursday 24th January 2019

    Seen on Twitter ( admittedly on parody Boris Johnson account but it is true ) Nicky Morgan is in fact staying in politics going to the House of...
    Post by: NelliePledge, Dec 16, 2019 in forum: General ME/CFS news
  13. NelliePledge
    Post

    Junk food 'should be labelled with how long you need to exercise to burn it off'

    Part of the answer is to reduce the sugar and fat content of junk food.
    Post by: NelliePledge, Dec 16, 2019 in forum: Other health news and research
  14. NelliePledge
    Post

    CAN LINGUISTIC ANALYSIS BE USED TO IDENTIFY WHETHER ADOLESCENTS WITH A CHRONIC ILLNESS ARE DEPRESSED? - Jones, Loades, Crawley et al Dec 15 2019

    Ah common sense. I don’t think there’s much of that involved in their theories.
    Post by: NelliePledge, Dec 16, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  15. NelliePledge
    Post

    ..Understanding the Role of Psychological Processes in Disease Development, Maintenance, and Treatment: The 3P-Disease Model, 2019, Wright et al

    Patronising in the extreme.
    Post by: NelliePledge, Dec 16, 2019 in forum: Other psychosomatic news and research
  16. NelliePledge
    Post

    ME/CFS services in the United Kingdom

    Interesting tweet with letter sent to Sussex CFS Service [MEDIA] This person has had CPET and is prescribed pyrostigmatine ? Mestinon
    Post by: NelliePledge, Dec 15, 2019 in forum: UK clinics and doctors
  17. NelliePledge
    Post

    Statnews - BMJ should retract flawed research paper on chronic fatigue syndrome -STAT - David Tuller Dec 2019

    Can anyone enlighten me about the readership of Stat News. ETA. Found this info on their site. https://www.statnews.com/about/
    Post by: NelliePledge, Dec 13, 2019 in forum: General ME/CFS news
  18. NelliePledge
    Post

    Scottish MP Carol Monaghan and her work for people with ME/CFS

    Yes some good news there.
    Post by: NelliePledge, Dec 13, 2019 in forum: General ME/CFS news
  19. NelliePledge
    Post

    BC Womens Hospital, Canada: Primary Care Toolkit, Office tools for management of ME/CFS & FM patients 2019

    That’s more like it. We should maybe send an email with a link to this to all the NHS services that we’ve discovered have online information. In...
    Post by: NelliePledge, Dec 12, 2019 in forum: Other guidelines
  20. NelliePledge
    Post

    "How nurses can support people with ME", 2019, Gilchrist

    So she’s currently in that NHS in patient place in Leeds?
    Post by: NelliePledge, Dec 12, 2019 in forum: General ME/CFS news
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