Great. In the vernacular they totally wipe the floor with Sharpe and his mate. ETA of course they do so by blowing away their thinking in a...
Good article I reckon- I’ve only been knowingly dealing with ME for 4 years so mainly the earlier stages are relevant to me. Some of the struggle...
More from France then. Wondering if there are more teams across Europe doing research that isn’t on the English speaking radar.
Awareness of just how unhelpful those illness beliefs are innit.
So Mayo Clinic is basically doing to US patients what the NHS is doing to UK patients. This is why PACE is a worldwide not simply a U.K. issue.
This popped up in a search I was doing. Salford booklet for their current 6 week PACE light programme. Haven’t read all of it....
Hasn’t this been done elsewhere? Is NIH only believing it now cos they’re involved
Must be fishing for activist twitter responses for next years rehash article
Dementia is the highest cause of death of women in the U.K. the costs to society are high due to people needing nursing home provision, social...
If only leading UK Psychologists and Psychiatrists had come together to speak out publicly and reject PACE when it was debunked.
My values include not falling for anything TC espouses. I’m definitely committed to that
Worth stating that in a lot of the country there aren’t even CFS clinics. People have to get referred to the pain service where they get a...
My understanding is that illnesses that can cause abdominal pain, pancreatic cancer for example has much worse detection rates. So how can anyone...
Decaf only and occasionally otherwise I’m more or less guaranteed a sleepless night and it’s consequences
The NICE guidelines don’t mention MRIs. There’s a list of basic blood tests and a few things they say shouldn’t be done unless indicated. There’s...
I I usually say ME but I mean that in an inclusive not an exclusive way. I have NHS CFS diagnosis and have also been diagnosed with ME by...
Ideally they should spend a week with someone with ME who is housebound, preferably someone who has no family carer and has to rely on paid care...
For me being too motivated to do activities is a factor in provoking malaise. I’ve had experience related to grief 15 years ago of not doing...
Maybe I’m over simplistic but to me fatigue is when you have to go to sleep. Occasionally if I’ve had some bad insomnia nights I get to a point...
Is this another way of saying patients should be activists. But obviously they can’t say activists because that has already been used for bad...
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