Dear @Pondering, If you want more detail of my thoughts on this please read carefully through the posts in the thread, where I hope the answers...
So that is pretty much half way in between I guess. I did not get involved in medical retirement or permanent disability sign offs much but I...
I doubt that doctors have 'gone along with forced treatment'. Doctors will have recommended the treatment only if they think it would be helpful...
This might be my fault. In support of the petition to the Scottish Parliament I said: It would be proportionate for at least one centre in...
That presumes that the diagnosis and interpretation are meaningful. At UCLH I am afraid I would not be confident of that in this area. It is not a...
Absence of data can in itself be compelling. We believe that smallpox has been eradicated in the wild because nobody in the last ten years has...
My memory is that recruitment to PACE was 2005-2007? The SMC patients clearly did not get CBT or GET but it does all seem very muddled and I think...
Yes, she put a piece on the net. I just googled her name and EDS....
I have just discovered that Baroness Blackwood has a history of ME. More recently she has had diagnoses of EDS and POTS.
As far as I know it is purely a means by which members of either House can call the government to account by asking for clarification of policy or...
I think we are getting too analytic. Her Majesty's Government has admitted that SMILE might be a tad dodgy. (And the rot might spread.) Seems fair...
I had forgotten that. I was implying that PACE was also biased but having forgotten that therapies were in addition to SMC I assumed that the...
self-reported outcomes might have been biased, for example participants may have been more likely to report positive outcomes because they knew...
The interesting question is why, if it is accepted that LP is not currently suitable for use on the NHS that the Health Minister should appear to...
This section from the health minister is actually quite interesting (mostly the larger type bit). I think it effectively says that LP cannot be...
I feel very uncomfortable about discussing individuals case histories without any official medical input. So I am not going to make further...
Thanks for the info. It looks to me as if there is a 'meme' going around not only social media but also some of the support charities. I am trying...
I have made some suggestions earlier in the thread. I would prefer not to keep going over issues that have implications for individuals. I have...
I absolutely agree. But I was just quoting what the paper said. I think maybe what they mean is that the dizziness cannot be attributed to the...
I have been sent a very helpful presentation on this from a paediatric rheumatologist. It looks as if maybe people do know and probably there is...
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