Found this FOI from 2012: requests info on recovery rates. part of reply: " The information you have requested is not held. The requested data...
Adverse events and deterioration reported by participants in the PACE trial of therapies for chronic fatigue syndrome Author links open overlay...
Very early the other morning I was hearing a sharp intermittent beep; it stopped and just as I was going back to sleep it started...
and also contradicts some of the things Simon Wessely tweeted
I thought this bit interesting: "A NICE spokesman said: "We do recognise the controversy about the currently-recommended treatments and will...
didn't Carol Monaghan quote from one participant of the PACE trial (re harms)? eta: " One participant in the original trial said: “After...
The OHC say something similar in their own research: "The study found significant improvements in participants belief they could change their...
That's not what I'm saying. Maybe a better way to put it is: If CBT is to be offered to ME/CFS patients, it should not be the version as used in...
Only if this CFS PACE version of CBT is shown for what it really is, and removed as a 'treatment' for ME/CFS. (What actual treatment or help for...
neither; genuine misunderstanding. This is the problem generally with using the term CBT. This seems to have gone full circle.......back to...
precisely. ?? beginners as in newly diagnosed......encouraged to gradually increase their activity? If the CFS/PACE style CBT stays then, as one...
From FB: "Luke Pollard Yesterday at 03:29 · Hello #Plymouth - yesterday I spoke in the debate on Myalgic encephalomyelitis (ME), in Westminster...
Back to Sharpe..... [MEDIA]
Article on on #MEAction website " “Stakeholders and biobank experts generally agree that it is feasible to establish a biobank and/or patient...
https://www.bmj.com/content/324/7328/7.1/rapid-responses " In 1992 Dr Anthony Pelosi , then Consultant Psychiatrist at the Lanarkshire Health...
yes, exactly but should be a separate issue (ie a separate illness to be treated). This CFS, PACE version of CBT, is very much based on the...
thanks for trying.
Understandably GET is being highlighted as being generally detrimental as a treatment for ME/CFS. But the message on the version of CBT as used in...
[MEDIA]
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