I’m assuming that Parker hasn’t challenged Coyne about the content of his blog which would indicate he doesn’t want to draw attention to the...
I did it. Tried to make full use of white space. Pity there isn’t a box at the end otherwise could have offered a critique of the survey. I’m...
How can we get this information to ME clinicians without individual patients having to be labelled bolshy? As the only person within the NHS that...
Yes I reckon so as I don’t think most people in the public or in medicine would think extremely bad illness when they think about ME. Their...
These Editors are presumably not at all worried about how unintelligent and ineffective it makes them look by taking 12 months or more in...
The point is very straightforward we may have relatively mild ME but we are NOT mildly ill. We have lost 50% of our functioning. If you call...
Same position as me then something doesn’t feel right but not showing up on routine testing. I’ve been waiting for my hypertension review to...
Hi @philw44 have you discussed this stuff with GP I’m not a scientist or medic but if I’d been having shortness of breath and chest round my...
I’ve got recent experience of being diagnosed and discovering I had “mild” ME I think this term can be counterproductive in terms of people...
Maybe worth throwing in the shopping bag study under Jo Daniels as an example of the ridiculous “research” that goes on
Thanks @Trish i should have thought of that when I posted that table
Actually maybe these people should be the mild category. ETA maybe these would be in remission - would be good if there was a set number of years...
I think whatever levels description using words are they will start with mild. It needs to apply only to people who are functioning right at the...
This has a table showing levels which would seem probably more relevant for ME where progression doesnt apply in all cases...
https://www.actionforme.org.uk/resources/questions-and-answers/what-are-the-details-of-the-brain-inflammation-phd-study-you-are-funding/ first...
i hope he's read my comment about the title of the thread :D
Did they get the photo from an advert for a sofa company :banghead: the patients in this study are severe are they not - so how many can even made...
People ARE being told unhealthy things under the title pacing or managing CFS. it’s the content in the manual that matters not the title of the...
Post Millions Missing having neuropathic pain and I’m taking the pregabalin at night sedation still there in the morning but I can live with it as...
@Sly Saint Your post made me turn it back on them- Some members of the “BPS ideological brigades” don’t know they are, others know but aren’t...
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