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  1. NelliePledge
    Post

    Menopause and ME - what's your experience?

    Totally unable to say what came first due to my ME onset being gradual and undiagnosed in my 40s and early 50s. I had some things that were...
    Post by: NelliePledge, May 2, 2019 in forum: General and other signs and symptoms
  2. NelliePledge
    Post

    Can we call ME/CFS a disease?

    Seems MEAssociation in U.K. use disease as well they have these posters with peoples pictures and quotes...
    Post by: NelliePledge, May 1, 2019 in forum: General Advocacy Discussions
  3. NelliePledge
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Agree @Pechius about the lack of self awareness of SW which I think is a likely interpretation my cynical first reaction was that he might have...
    Post by: NelliePledge, May 1, 2019 in forum: ME/CFS research
  4. NelliePledge
    Post

    Can we call ME/CFS a disease?

    I just say illness which isn’t scientific or medical but I’m not qualified to say anything scientific or medical. Just comment about my own...
    Post by: NelliePledge, May 1, 2019 in forum: General Advocacy Discussions
  5. NelliePledge
    Post

    Mirror: Woman, 28, goes from keen runner to year in dark room because of severe disorder

    The mirror article links to two other articles with similar but different stories one a “recovery” from better diet. The common theme appears to...
    Post by: NelliePledge, May 1, 2019 in forum: General ME/CFS news
  6. NelliePledge
    Post

    Reports from participants in GET and CBT trials

    Once I get up I don’t sleep until I go to bed. If I need rest I lie down with eyes shut I prefer not to nap because I feel rubbish when I wake up....
    Post by: NelliePledge, May 1, 2019 in forum: Psychosomatic theories and treatments discussions
  7. NelliePledge
    Post

    Reports from participants in GET and CBT trials

    I wouldn’t beat yourself up about sleep timing. As long as you get a reasonable amount of sleep. I find my sleep delay is worse according to how...
    Post by: NelliePledge, May 1, 2019 in forum: Psychosomatic theories and treatments discussions
  8. NelliePledge
    Post

    UK: Contaminated Blood scandal

    The U.K. inquiry has finally started. For anyone wondering why the situation in the U.K. about treatment of people with ME PACE etc is taking...
    Post by: NelliePledge, Apr 30, 2019 in forum: Other health news and research
  9. NelliePledge
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Very probably indeed
    Post by: NelliePledge, Apr 30, 2019 in forum: ME/CFS research
  10. NelliePledge
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Thanks @Esther12 wasnt sure if I was off the mark.
    Post by: NelliePledge, Apr 30, 2019 in forum: ME/CFS research
  11. NelliePledge
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Am speculating here based on zero science knowledge but would they have been able to get hold of a couple of samples from people with another...
    Post by: NelliePledge, Apr 30, 2019 in forum: ME/CFS research
  12. NelliePledge
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    @rvallee @Alvin showing your ages guys. ;)
    Post by: NelliePledge, Apr 30, 2019 in forum: Fundraising
  13. NelliePledge
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Fab-u-lous news...
    Post by: NelliePledge, Apr 30, 2019 in forum: Fundraising
  14. NelliePledge
    Post

    Validation of impaired Transient Receptor Potential Melastatin 3 ion channel activity in natural killer cells from CFS/ME, 2019, Cabanas et al

    I’m not up to reading details but I’m interested whenever a different medication gets mentioned. I looked up nifedipine on Wikipedia and it seems...
    Post by: NelliePledge, Apr 30, 2019 in forum: ME/CFS research
  15. NelliePledge
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    This is brilliant only $227 to go to $100k. Take that tripemongers. Ps I don’t mean they can literally take the money obvs. I’m sure they...
    Post by: NelliePledge, Apr 30, 2019 in forum: Fundraising
  16. NelliePledge
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Wessely teed it up for them ETA reverse psychology anyone?
    Post by: NelliePledge, Apr 29, 2019 in forum: ME/CFS research
  17. NelliePledge
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    This will be the one I’m sharing then
    Post by: NelliePledge, Apr 29, 2019 in forum: ME/CFS research
  18. NelliePledge
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Surely not fancy him pointing out a headline like that and some journalists using it....... ETA #weaselwords
    Post by: NelliePledge, Apr 29, 2019 in forum: ME/CFS research
  19. NelliePledge
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Ok so it’s just a regurgitation of Reuters
    Post by: NelliePledge, Apr 29, 2019 in forum: ME/CFS research
  20. NelliePledge
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Who has commented in the Telegraph? Is that also SW Is the comment coming from him ie their top “eminence” an indication that they 1 recognise...
    Post by: NelliePledge, Apr 29, 2019 in forum: ME/CFS research
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