forgetting things/facts can be pretty harmless, forgetting how to do things not so much
So they’re looking for something equivalent to focus groups to get views from those 2 groups of patients. Obviously approach for people with...
Good point I will make sure I use plain English description if I decide to mention it.
I feel like I should be telling GP I have OI so it can get recorded. I get pressure in chest and arm at times and I did have an ECG done last...
Signed
Except the Norwegians clearly “get it”
or maybe just like me hoping that as before there will be a big enough spread of donors that they won’t have to go back into savings they already...
This could be me I don’t think I have OI it’s never been explored by GP or in my one private consultation. I have hypertension so didn’t think...
The total is on 40% $38+k by the way
I’m lucky to have paid off my mortgage and don’t have big expenses now I’m retired and don’t do very much socialising so I will definitely be...
When I get tired but wired it is as much my body as in my brain. Fizzy sort of aching not being able to get into a comfortable position lying...
Signed and shared to local group
If you’re not going to make the effort to communicate in a way that’s accessible to people why would they make any effort to possibly over exert...
They’re all busy at the moment the Congress advocacy and the NIH event I don’t imagine they’ve got many spare minutes
Yes because the BPS contingent are going around doing conferences and training courses and have persuaded the NHS hierarchy of its cost saving...
Disrespect due to not believing the patients. So much easier to judge people if you think they are deliberately not helping themselves by...
It’s a terrible website not easy to use and the content doesn’t look too good couldn’t see anything about the need for research into the illness....
Unfortunately to really get it to change if and when there is a sea change in understanding at the top as much effort is going to be needed into...
I was on Facebook messenger yesterday evening with a young woman just joined our local Facebook group. She’s very unwell but struggling to get a...
Spotted I hadn’t done this. My IT skills letting me down as I can’t cut and paste. But the point made in my report was that. Of the 641 people...
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