Sorry @DokaGirl not been on during the day thanks to @Binkie4 for answering your question
Glad I spotted this welcome @PhysiosforME :thumbup:
@Marit @memhj just tagging @dave30th in as he wasn’t on your list
Drawing a pentagon, writing a sentence. What season of the year is it. Being told 3 words then asked to repeat them a few minutes later. Did...
spotted this on twitter seems that a small group are getting together to advocate for ME patients to their profession. [MEDIA]
This is a good point I’m not sure M.E. Association have fully taken on board the extent of the move away from CFS clinics and people being...
We had some great banter about it on the thread on here too I think
I sort of managed to get away with going to the CFS clinic although in retrospect I did end up increasing activity while I was doing the programme...
I think that’s likely to be interpreted in practice as having gone through an NHS CFS clinic. ETA see @Trish already made that point. The powers...
Great idea for a paper. Thanks all. This could have a real impact.
The bit about COPE is interesting- sorry I can’t cut and paste it - whether the anonymised study where retraction seems to be being considered is...
https://www.meassociation.org.uk/2019/06/meeting-with-minister-raised-important-concerns-about-welfare-benefits-for-people-with-me-26-june-2019/...
Or FND?
Ive never seen recurrent sore throats and swollen lymph nodes referred to as “Oxford symptoms* before. Not sure what the point is? ETA. In the...
Wondering what projects they have in mind I couldn’t see anything about that
Even with gradual onset mild ME it isn’t a question of being fatigued and gradually getting worse. The viral flu type symptoms sore throats...
Emma Joy is on social media
Great project
Doing a great job @Michiel Tack
They just see it as a white lie for our benefit. Unlike the white lies and distractions I used when communicating with my parent who had severe...
Separate names with a comma.
