Blog by Fran Halsall who has fibromyalgia and MS diagnoses. Mentions the difference in how the two are dealt with....
this was interesting I wasn’t aware MS had its own fatigue terminology- lassitude. https://multiplesclerosis.net/living-with-ms/ms-fatigue-lassitude/
Indeed we used to get urgent changes published within a couple of hours - certainly the same day. They seem to be still focused on their paper...
yes definitely stamina is a lot worse than before I was ill before I was ill I could walk quite long distances and do more intense activity in...
anger rumination another one to add to the BPS tripe terminology list their ridiculous assumptions and terminology make me bloody angry
wow well at least my cynicism is proved wrong in this case its just a ridiculously convoluted quill pen last millenium process to get changes made...
seems like my cynicism is beginning to look accurate what does now mean it could mean I'm now engaging in a process of dealing with this rather...
Great to see the Nottingham guys there
Maybe @JaimeS is at the OMF Harvard event.
Yes I don’t think many people will get through a full copy of a research paper on a phone - the summary maybe. I thought you were talking about...
Better to avoid 2 column. It isn’t easier to read as you have to scan down the page twice. If you use headings, sub headings, bulleted lists,...
I think the point about funding in proportion to disease burden is probably quite difficult for any politician or medical establishment figure who...
Why do organisations persist with these paper style formats when everyone reads online now. Three column format is so 20th Century and not easy to...
Shared to our local group
it’s the stated view of the department of health to parliament put out under the ministers name so if they then do something pro LP they will be...
Obviously he was a speaker at Invest in ME so has a lot of contact with US ME researchers. Does he have any collaborations with U.K. based M.E....
I heard the 2 Nottingham Profs involved with the Harvard Group are going to this
When I was undiagnosed I used to go for days with very little sleep then I would spend the weekend in bed crashed out. Eventually I had to use...
They are going to be communicative they want people’s money. Point is is there actual benefit in what they are selling otherwise it is just snake oil
She said this about herself but presumably the person (I won’t say therapist don’t want to dignify them with that title) delivering the LP element...
Separate names with a comma.
