I am not surprised that they did not tell the world. Enbrel is hugely expensive, causes serious side effects including disseminated tuberculosis...
I have only looked at the abstract but I don't follow how you can have OI lying down if 'orthostatic' means standing up. Interesting that they...
Dear @Hip I have watched those videos but so far I can see no reason to think they are relevant to PWME. We have so far not a single medically or...
Yes but as I explained there would be bone erosion or displacement in that case. TB can certainly do it but as my chief used to say even a...
My advice is only to use animals to study the normal rules of physiology and physiological responses. If you want to study causation of disease...
No problem. Do it in triplicate. Then biopsy.
As far as I know there is a spectrum of joint laxity without any clear indication that at any point it becomes a specific disorder. Just as being...
Nope. I set up the use of rituximab for autoimmunity and I went nowhere near an animal model. There was no point because there are no animal...
I think this is fairly typical of people who get things like recurrent shoulder dislocation. Things start around puberty. I suspect that simply...
I am interested to know at what age you were diagnosed as hEDS @Michelle? What is a special ED PE class?
That is because it is not remodelling bone and it is bone that shows on an x-ray! If inflammation remodels bone it will show on an x-ray....
What one might call semantic finesse, or finesse semantique?
I am still worried that tests like this feel us about the symptom of PEM, which is present even before trying to exercise. What @Snow Leopard says...
But @Keela Too did put it in quotes - "placebo effect" so she was absolutely correct. Just as one might say, and Noam Chomsky did, that the...
I think that is the key question @Kitty. For historical reasons a myth has grown up that there is a condition called EDSIII or hEDS but the...
Der @Annamaria None of those arguments are actually relevant to the points people have been making. We are all aware that a number of causal...
Yes, it might make sense.
If it did then it would show on x-ray and it doesn't. It is a bit like suggesting that PWME have trouble walking because they have broken legs....
If EDS is not associated with ME then the process of diagnosing EDS is the same for everybody - picked up by its clinical features. In terms of...
That seems unfortunate.
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