Neat title!
So why bother to have two guidelines? I am afraid I don't get it. And I think it would generate exactly the problems people here want to avoid....
I am not sure that there is particular focus on unexplained fatigue rather than PEM, which is also a requirement. I understand that patients do...
No, I think the guideline is quite good. I have been making arguments in response to people who seem to want to change it. And I have said I...
I don't see anywhere where NICE 2007 defines ME/CFS in terms of unexplained chronic fatigue. It says the guideline is there to diagnose and manage...
I think it is useful to be having this debate now because, as I understand it, the NICE committee will be dealing with diagnostic issues on...
Pity. The introduction is a mix of blather trawled from just about anywhere. It is a pity that they use our paper, which says we do not have any...
That is pretty much what I have suggested needs considering to both MRC and NIH through their requests for ideas. I agree that it should be...
The patient sector is already doing it. There is an application with the MRC at present traceable back to one of our members. There has been input...
I don't understand the figure. Presumably there are lots of dots, some on top of each other, because there are lots of subjects or test runs. But...
As I explained above there are certainly features of the disease, just as there are features of arctic redpolls. But you have to use these...
The support sounds like woo-woo to me. What I would say is that it is probably well worth while having something to remind you several times a...
There're lots of problems with the drug industry but I suspect not the ones being touted in this piece. I doubt supplements or diets or exercise...
I am not sure what 'comorbidity' would mean here. Lots of people are hypermobile and by and large it is not a great problem. EDS types that affect...
Pretty much everyone who is not a doctor and has not spent three years in clinical training trying to make diagnoses tends to think that way. But...
As I have mentioned before, I used to work in one of the first hypermobility clinics in the UK. I have worked alongside a hypermobility clinic for...
It will be interesting to see what discussion this paper generates. The odd thing to me is that the odds ratios are almost exactly the same for...
I do not know of a UK rheumatologist who can give any useful advice re EDS. There isn't anything really to advise as far as I am aware....
Yes, we can learn a lot from stories like this - that sometimes people get better regardless of what 'treatment' they are on.
I think any sort of numbers game is fraught here. Maybe the main reason for referring to a specialist would be that the GP cannot decide. So in...
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