I am fairly sure everyone uses the data sheet recommendation of 100mg methylprednisolone IV.
Somebody did. My comments are on the CCI thread I think. It would be good to have a new paper on prevalence but I doubt the 1/5000 figure is that...
Yes but the effects would only have lasted six hours. And we know that these agents do not routinely have a lasting effect onPWME. When I said...
The interest in mast cells in arthritis really goes back to a paper by Adrian Crisp around 1994. But nothing has ever indicated that mast cells...
I would be interested to know what @WillowJ thinks of this. WillowJ and I have been debating the merits of various approaches to hEDS. One of the...
I agree that ME is not fatigue but I think patients who still felt significantly ill would not rate fatigue as nil. 'Fatigue' is accepted as the...
I am not sure what you are meaning by multi-system nature of the illness. This is often quoted but I don't think we have any evidence for it....
In elderly patients who may have kinking of vertebral arteries passing through cervical vertebrae immobilisation might prevent blackouts but that...
This account was actually what made me think there must be a different explanation. My memory of all the details is incomplete, having now been...
No absolutely not. That is what I am begging those involved to do - get some imaging and publish it. What I consider unethical is referring for...
This section of a post has been copied from this thread: Jen Brea: My ME is in remission And subsequent posts discussing it moved from that...
I have chosen a slide of the results from the open label extension rituximab study for my PACE presentation to my old academic unit on Wednesday....
Valid argument. But suppose the CCI had been there throughout and the ME only persisted because of medullary compression? I don't think I think...
Now that is what I call an inspired question. It is hard to see how CCI would interact with a general immune or metabolic problem. But suppose...
I agree that it is worth digging down to try to understand. I am not quite sure what you are wanting to imply by some of your later questions but...
Dear @Stewart I don't know how old you are but by middle age we all have foramina stenosis at a couple of levels in the cervical spine. And...
Dear @JenB With due respect to Dr Kaufman, I don't see any ethical basis for further surgery on PWME and I would advise strongly against it until...
That does not seem the right balance of argument to me, @Stewart. We don't actually have an evidenced account of cervical surgery correcting a...
Proving one is wrong about x is fine. That is not what I was talking about. What I was talking about is proving something that contradicts a...
I don't really want to plough through issues of hypermobility but I think it needs to be thought through because of the concerns about it being...
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