A number of posts have been split to create a new thread in the Advocacy forum: United Kingdom: Independent SAGE
Yeah, this made me happy. Quite a bit of the detail was speculative, but the message that there is a biological underpinning, and that there...
I had reflux for a while after the onset of ME/CFS, but it went away. I don't know why. I remember it wasn't pleasant. I wonder if it might be...
So Knoop's reply that the actimetry is only used at the beginning of the trial to divide patients into two groups based on activity level seems to...
So, they are looking at autoantibodies reacting against proteins outside cells, in people with Covid-19: People with Covid-19 had a higher...
That's another article in Nature that doesn't psychologise or downplay the problem of Long Covid. There was a November 2021 Nature article Do...
We've moved a post from this thread to create a new thread: Does Covid-19 vaccination reduce the risk of Long Covid?
I like that they noted that immune response profiling has to go beyond the old 'cytokine levels in peripheral blood' analysis. Tissues need to be...
Viral persistence is one hypothesis discussed, and surely one that could be investigated fairly easily. They note that they found CoV-2 in the...
The diagram in the Nature article provides a good summary of the ground covered: [ATTACH]
The article refers to a study that has good controls - we have a thread on the study here Immunological dysfunction persists for 8 months...
2022 Twitter thread where people express support and sympathy for ME/CFS patients Dr Lea Merone of the University of Queensland notes in a...
It's interesting to see this study from Columbia (the country). It's not clear from the abstract whether there was any comparison with...
There doesn't seem to be a lot of evidence for the idea that there is a lack of dopamine binding in the brains of fibromyalgia sufferers yet....
Interesting to read this justification for using a wait-list control in the trial design, in response to a peer reviewer asking for such a...
From an email: "Emerge Australia’s Online Community Groups pilot project is in its final phase! We are pleased to announce that our final groups...
https://www.japantimes.co.jp/news/2021/10/07/national/long-covid-japan-patients/ You may need a free account to read it. It talks about the rise...
Signed
Yes, thanks to those trying to engage on this, and for sharing the document @Grigor. Knoop's responses to some questions start on page 8 - I too...
I really should not have gone down this rabbit hole. Stool consistency That's important because pretty much all of the other measures of...
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