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  1. Hutan
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    We've made a new thread for the discussion about TBI and ME/CFS: Traumatic brain injury - similarities with and differences to ME/CFS, including PEM
    Post by: Hutan, Mar 12, 2022 in forum: 2020 UK NICE ME/CFS Guideline
  2. Hutan
    Post

    Recursive Debility: Symptoms, Patient Activism, and the Incomplete Medicalization of ME/CFS, 2022, Lim Rogers

    I'd argue that it's the stigma of the disease that has been the biggest hurdle to activism, not the debility. Think about people like Michael J...
    Post by: Hutan, Mar 12, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. Hutan
    Post

    News from Italy

    A new paper Italian intersociety consensus on management of long covid in children, 2022, Esposito et al
    Post by: Hutan, Mar 12, 2022 in forum: Regional news
  4. Hutan
    Post

    Brain fog/ cognitive dysfunction

    USA: News from #MEActionLink to an article on cognitive dysfunction by MEAction. Includes descriptions and tips.
    Post by: Hutan, Mar 11, 2022 in forum: Neurological/cognitive/vision
  5. Hutan
    Post

    Looking for authoritative explainer of cognitive dysfunction

    USA: News from #MEAction Link to an article on cognitive dysfunction by MEAction.
    Post by: Hutan, Mar 11, 2022 in forum: General Advocacy Discussions
  6. Hutan
    Post

    ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine

    The sad fact is that the people who promote these sorts of ideas aren't very very stupid. If they were very very stupid, they wouldn't be such a...
    Post by: Hutan, Mar 11, 2022 in forum: Psychosomatic theories and treatments discussions
  7. Hutan
    Post

    Tests for borrelia (Lyme)

    https://www.healthrising.org/blog/2020/06/02/chronic-fatigue-syndrome-lyme-phelix-bacteriophage/ Dominic Stanculescu posted a blog about this test...
    Post by: Hutan, Mar 11, 2022 in forum: Laboratory and genetic testing, medical imaging
  8. Hutan
    Post

    Perspective: Drawing on Findings From Critical Illness to Explain ME/CFS, 2022, Stanculescu, Bergquist

    (For those wanting more information about that Phelix bacteriophage test, we have a thread on it: New Phage based test for borrelia)
    Post by: Hutan, Mar 11, 2022 in forum: ME/CFS research
  9. Hutan
    Post

    Perspective: Drawing on Findings From Critical Illness to Explain ME/CFS, 2022, Stanculescu, Bergquist

    It's possible to make a comment on the study - you just have to register. Clearly, we can't just sit back and wait for OMF to solve ME/CFS for...
    Post by: Hutan, Mar 11, 2022 in forum: ME/CFS research
  10. Hutan
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    A number of posts have been copied to The HANDI Working Group
    Post by: Hutan, Mar 10, 2022 in forum: 2021 Cochrane Exercise Therapy Review
  11. Hutan
    Post

    “Graded exercise therapy: Chronic fatigue syndrome” by The HANDI Working Group (2019)

    The thread has been split to create a thread about the Handi Working Group in general: The HANDI Working Group
    Post by: Hutan, Mar 10, 2022 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Hutan
    Post

    Australia: 2022 The CHROMIC Study - Understanding ME/CFS and discovering new treatments through repurposed pharmaceuticals - recruiting

    On the negative side, there's this.
    Post by: Hutan, Mar 10, 2022 in forum: Recruitment into current ME/CFS research studies
  13. Hutan
    Post

    Australia: 2022 The CHROMIC Study - Understanding ME/CFS and discovering new treatments through repurposed pharmaceuticals - recruiting

    Re the commercialation aspect: The project is a lot like the work of Paul Fisher's team, except that it is using muscle and brain cells derived...
    Post by: Hutan, Mar 10, 2022 in forum: Recruitment into current ME/CFS research studies
  14. Hutan
    Post

    Australia: 2022 The CHROMIC Study - Understanding ME/CFS and discovering new treatments through repurposed pharmaceuticals - recruiting

    https://impact.deakin.edu.au/2021/08/new-research-to-explore-myalgic-encephalomyelitis-chronic-fatigue-syndrome/ So, one of the three studies...
    Post by: Hutan, Mar 10, 2022 in forum: Recruitment into current ME/CFS research studies
  15. Hutan
    Post

    2022 Guardian: "How to move: exercising with chronic fatigue syndrome" and related articles

    Yes, the only exception might be for people who are bedbound, where some carefully chosen exercise might help retain function and blood...
    Post by: Hutan, Mar 10, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  16. Hutan
    Post

    ME researcher Jonas Bergquist - interviews, talks

    Open Medicine Foundation (OMF) Dr Bergquist has been appointed Chief Medical Officer of OMF. More at the link.
    Post by: Hutan, Mar 10, 2022 in forum: ME/CFS research news
  17. Hutan
    Post

    Open Medicine Foundation (OMF)

    Announcement from OMF Feb 2022: https://www.omf.ngo/new-changes-announced-for-omf/ Continuing the Research: New Changes for OMF Announced In...
    Post by: Hutan, Mar 10, 2022 in forum: News from organisations
  18. Hutan
    Post

    Perspective: Drawing on Findings From Critical Illness to Explain ME/CFS, 2022, Stanculescu, Bergquist

    Open Medicine Foundation (OMF) So, this is not just another speculative paper from a researcher who doesn't matter. This represents the thinking...
    Post by: Hutan, Mar 10, 2022 in forum: ME/CFS research
  19. Hutan
    Post

    Small adrenal glands in chronic fatigue syndrome: a preliminary computer tomography study, 1999, Scott et al

    Just coming back to add the link: Perspective: Drawing on Findings From Critical Illness to Explain ME/CFS, 2022, Stanculescu, Bergquist
    Post by: Hutan, Mar 10, 2022 in forum: ME/CFS research
  20. Hutan
    Post

    Perspective: Drawing on Findings From Critical Illness to Explain ME/CFS, 2022, Stanculescu, Bergquist

    There's an awful lot to unpick in this paper. Taking one statement pretty much at random: I don't know that people with ME/CFS have issues with...
    Post by: Hutan, Mar 10, 2022 in forum: ME/CFS research
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