So what would they do if another researcher wanted the data? (I realise this doesn't fall in the jurisdiction of the FOI, but hypothetically ). I...
I emailed her a few days ago about this issue and continue to pass on any relevant info
see: "At a meeting organized and financed by PACE investigator Peter White, Larun obtained privileged access to data that the PACE investigators...
This is something that bugs me with the ME charities that keep saying more 'specialists' and 'special ME services/clinics' are needed. Why...
https://www.s4me.info/threads/bbc-radio-scotland-john-beattie-show-will-feature-discussion-of-me-cfs-14th-feb-2018.2392/page-1
Anyone posting/writing about this debate could/should add the me-pedia PACE trial link http://me-pedia.org/wiki/PACE_trial as most people won't...
Article in the Herald: "Glasgow MP Carol Monaghan secures parliamentary examination of controversial ME trial A key parliamentary debate has been...
I think that C Monaghan is on the ball with this; several times when the presenter started veering things off course she pulled it back to PACE....
ES: every day is a choice of small activities. Interviewer: It must take a toll on your mental health ES you have to learn to take enjoyment from...
Talking about PACE trial debate...... Dr Spence........explaining what ME is, what causes it, no known cause. Emma Shorter; talking about how she...
the bbc radio scotland programme tomorrow (14th Feb) should be here: http://www.bbc.co.uk/programmes/b09rjrd6 eta: see thread here...
or on the bbc parliament channel: https://www.bbc.co.uk/tv/bbcparliament
sorry to but in again......... @Inara yes it must be very catchy as a song as I still remember it after 40 years! Clearly very popular also as it...
as a little light relief............this was a german song I learned at school (love the rubber duck!) [MEDIA]
[ATTACH] DTs slide so not 14%, but 13% my mistake.
there is a charity called Smile for ME https://www.smileforme.org.uk/ you can comment on their site here: https://www.smileforme.org.uk/comments/
Another bad result of the claimed 'success' of PACE trial were all the 'research' projects that followed; Crawleys MAGENTA, SMILE and FITNET for...
I think a certain american gentleman might currently be writing something on the issue.........:cool:
I posted this quite early on this thread but no direct answer. @Adrian
"It seems that no-one has examined the validity and reliability of the survey cited, it has simply been taken at face value. It’s assumed that the...
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