I find that an odd statement @petrichor. Everyone has ideologies, and some are more useful than others. Some are worth holding onto and some are...
Just to add, Ron closes this November update with "So, I'm kind of excited about this. This is a possibility. But again, all we're trying to do...
Ron says that the work on this hypothesis started when it was found that all of the people on their severe ME/CFS study had a mutation in the IDO2...
From the press release:
There's this open access paper that seems to be about the set-up of the study: Cohort description: The Danish study of Functional Disorders, 2017,...
Also at the link is a terrific response about the application of GRADE by NICE in the ME/CFS Guideline by @Michiel Tack (dated March 2021). If...
The forum thread on that recent study is here: Acute Corticotropin-Releasing Factor Receptor Type 2 Agonism Result in Sustained Improvement in...
It's disappointing that everyone has fought so hard to try to remove unevidenced ME/CFS treatments only to have the MEA actively promoting another...
I've submitted a complaint using the website's facility, noting the requirements set out in the NICE ME/CFS Guideline about any recommendations of...
Treatment They suggest that if something similar to what happens in diabetes in terms of neuropathy/vascular issues is happening, then the drugs...
Re anosmia (loss of the sense of smell) More on the microvascular hypothesis: I thought this was interesting about a link between nerve...
I wondered that @Trish, but we've come across Bruce Patterson before. His solution to Long Covid does not involve apheresis e.g. USA: InCellDx Dr...
Or, indeed, in anyone else who prefers their medical interventions to have some rational basis.
Discussion of a treatment to filter microclots from the blood (apheresis) has been split off to a new thread: Aphaeresis/ Apheresis (for removal...
PRS
I've had good feedback about @Michiel Tack's and Evelin's recent article about the PACE trial and more when I've given it to people for this...
Thanks for your ongoing efforts @tuha.
From BPS attempts at psychologizing Long Covid @Art Vandelay I agree that quote is a bit worrying, and doesn't really fit well with Avi Nath...
There appears to be some 'reimbursement for time': The blog that is linked on the information page actually comes across really well. Note that...
It's worth getting copies of letters from specialists and GP records. Some practices now have records that can be viewed by patients - which...
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