Credit to Sonya and her team, they are working on getting the message out.
A post about a large German epidemiological study has been moved to Long Covid epidemiology (prevalence, incidence, recovery rates)
From the study that @lycaena linked to: A huge study, but with a 3 month minimum, it's a bit early to know about medium term impacts....
Due to the direction of the posting, we've changed the title of this thread to cover brain fog/cognitive dysfunction generally, rather than just...
It's so frustrating to hear doctors talking like this about ME/CFS, building up the wall of misinformation that we have to painstakingly take...
From a study by UK ME/CFS charities (follow the arrow to the post) Also problems with selection in the UK survey too, I guess. But I don't think...
I think it might be because there is no good quality evidence for problems with corticosteroids levels being a feature of ME/CFS.
I have been rather concerned about the way ANZMES approached this whole thing. First they sent out a letter in which people, who many in the NZ...
A post about a large US epidemiological study on PASC has been moved here: Long Covid epidemiology (prevalence, incidence, recovery rates)
I think this is an interesting study; I think they found real differences! Yes, I have allowed myself an exclamation mark. The leg pain and...
We've talked about misery perfusion before (in the brain). Looks as though any part of the body can have it.
This long Stat article is by Eric Boodman. I think he's done a really good job at setting out the issues. Which are many. The story could...
Cort has written about this study: https://www.healthrising.org/blog/2021/11/13/mast-cell-activation-ibs-fibromyaglia-chronic-fatigue-syndrome/...
I don't think I've experienced it as pronounced as that, just the feeling of being very cold, shivers that move across my body that probably can't...
That's a very nice resource @Amw66. I liked the emphasis on believing that the young person is actually ill. And this: I'd probably go further...
:rofl:
Yeah, it does seem to be testing for consistency. It would be easy to cheat, by recording the answers, but that would defeat the presumed purpose...
That link takes you through to a Guardian article about the NICE ME/CFS Guideline (at the time, the draft version). :)
Are the patient charities (including the Long Covid charities) able to do anything to warn people to avoid this study? It sounds like a disaster...
I don't think 'patients driving demand' is a reasonable defence. Patients can want all sorts of things if they think they might be cured....
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