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  1. NelliePledge
    Post

    Issues w/nausea in PEM

    I get croaky throat when my energy is starting to go into the red. I get bad sore throats and swollen glands on my worst flare up of symptoms. I...
    Post by: NelliePledge, Sep 17, 2018 in forum: General and other signs and symptoms
  2. NelliePledge
    Post

    Hope 4 ME & Fibro Northern Ireland annual conference, Monday 17th September 2018

    Well done hope you all have a brilliant day.
    Post by: NelliePledge, Sep 17, 2018 in forum: General ME/CFS news
  3. NelliePledge
    Post

    Michael Sharpe skewered by @JohntheJack on Twitter

    All he needs now is a picture of a bull to match up with the cock. ETA realise this might be helpful for folks who’s first language isn’t English...
    Post by: NelliePledge, Sep 16, 2018 in forum: General ME/CFS news
  4. NelliePledge
    Post

    Concerns about Cochrane

    Biased junk - surely not :whistle::wtf:
    Post by: NelliePledge, Sep 16, 2018 in forum: Other health news and research
  5. NelliePledge
    Post

    Whether to have a flu vaccination

    I’m definitely having it every Christmas I spend 5 days with family give Christmas hugs to friends and family at get togethers. Last year I picked...
    Post by: NelliePledge, Sep 14, 2018 in forum: Home adaptations, mobility and personal care
  6. NelliePledge
    Post

    Presentation at EUROMENE - London, UK

    Seconded And for any non science people like me wondering about ER stress here’s Wikipedia’s article on ER...
    Post by: NelliePledge, Sep 14, 2018 in forum: ME/CFS research news
  7. NelliePledge
    Post

    UK: Forward ME charities at the RCGP conferences, 2018, 2019

    Not sure what AFME will be giving out at least MEA have the Purple Book which hopefully they will be.
    Post by: NelliePledge, Sep 12, 2018 in forum: General ME/CFS news
  8. NelliePledge
    Post

    Coping with Christmas - start in Sept

    I got my MEA Christmas Cards a few weeks ago but usually don’t start doing Christmas til November but I don’t have a family to cater for I’m a...
    Post by: NelliePledge, Sep 12, 2018 in forum: Relationships and coping
  9. NelliePledge
    Post

    Name and shame list of institutions and psychiatrists/psychologists/pediatricians coercing exercise therapy on unwilling ME/CFS patients

    I suspect UK list of good places for ME would be very short, possibly empty if decided on by folks on this forum. However there will be people...
    Post by: NelliePledge, Sep 12, 2018 in forum: General Advocacy Discussions
  10. NelliePledge
    Post

    'Shaking and trembling with ME/CFS' - Chronically Hopeful

    Yes thanks @hellytheelephant piriton knocked me out. Apart from being sluggish from that feeling better today no shaking
    Post by: NelliePledge, Sep 11, 2018 in forum: General and other signs and symptoms
  11. NelliePledge
    Post

    Donate to the £55k fundraiser for a UK #MEAction organiser!

    I think it was announced in June that they’d changed their mind and were going ahead on recruiting starting with a 3 month contract. Which could...
    Post by: NelliePledge, Sep 11, 2018 in forum: Fundraising
  12. NelliePledge
    Post

    How many BPS studies since 2014

    Too many - sorry couldn’t resist saying it
    Post by: NelliePledge, Sep 11, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  13. NelliePledge
    Post

    Name and shame list of institutions and psychiatrists/psychologists/pediatricians coercing exercise therapy on unwilling ME/CFS patients

    For the NHS there’s this website you can feed back on about different services. I first saw it on a forum and I believe one or two people have had...
    Post by: NelliePledge, Sep 11, 2018 in forum: General Advocacy Discussions
  14. NelliePledge
    Post

    Treating chronic fatigue syndrome / Oxford Neuroscience

    Definitely agree with this @Sly Saint it goes back to that thread we had a while back about all the different names they give to CBT/GET including...
    Post by: NelliePledge, Sep 11, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  15. NelliePledge
    Post

    An Introduction To ME By Dr Hng

    Not sure what this product is. Is it a presentation or a document. The content is some extracts from the book. If a presentation there is far...
    Post by: NelliePledge, Sep 11, 2018 in forum: General ME/CFS news
  16. NelliePledge
    Post

    How GET / CBT model harms. Let us count the ways...

    Not directly a result of GET/CBT but what can be a risk happening when GET/CBT is unsuccessful snd people are still on clinics books and still...
    Post by: NelliePledge, Sep 11, 2018 in forum: General Advocacy Discussions
  17. NelliePledge
    Post

    UK state benefits and pensions discussion

    If you have employers Ill Health Retirement you only get contributions based ESA for any period when you’re no longer being paid statutory sick...
    Post by: NelliePledge, Sep 11, 2018 in forum: Work, Finances and Disability Insurance
  18. NelliePledge
    Post

    'Shaking and trembling with ME/CFS' - Chronically Hopeful

    My fizzing is all over the body.
    Post by: NelliePledge, Sep 11, 2018 in forum: General and other signs and symptoms
  19. NelliePledge
    Post

    'Shaking and trembling with ME/CFS' - Chronically Hopeful

    I don’t think the soup we had with a lot of celery in it helped I was getting up for the loo every couple of hours. Anyway I’ve got my magnesium...
    Post by: NelliePledge, Sep 11, 2018 in forum: General and other signs and symptoms
  20. NelliePledge
    Post

    How GET / CBT model harms. Let us count the ways...

    So sorry to hear that. I think Ill Health Retirement needs looking at because there seems to be a lot of inequity. I only had a couple of years...
    Post by: NelliePledge, Sep 11, 2018 in forum: General Advocacy Discussions
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