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  1. NelliePledge
    Post

    What research do you want to see? (study ideas)

    is it me or has there been a flurry of papers this week?
    Post by: NelliePledge, Aug 18, 2018 in forum: General Advocacy Discussions
  2. NelliePledge
    Post

    Illness beliefs of adolescents with CFS and their parents: the perceived causes of illness and beliefs about recovery, 2018,Loades et al (inc Chalder)

    When the patient and family blaming begins
    Post by: NelliePledge, Aug 18, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. NelliePledge
    Post

    Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in CFS, 2018, Barnden et al

    Thanks
    Post by: NelliePledge, Aug 18, 2018 in forum: ME/CFS research
  4. NelliePledge
    Post

    Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in CFS, 2018, Barnden et al

    Ok I got the wrong impression there so they think the increase in myelin elsewhere in the brain indicates it’s possible there’s reduced myelin in...
    Post by: NelliePledge, Aug 18, 2018 in forum: ME/CFS research
  5. NelliePledge
    Post

    What research do you want to see? (study ideas)

    https://www.s4me.info/threads/hyperintense-sensorimotor-t1-spin-echo-mri-is-associated-with-brainstem-abnormality-in-cfs-2018-barnden-et-al.5032/#p...
    Post by: NelliePledge, Aug 18, 2018 in forum: General Advocacy Discussions
  6. NelliePledge
    Post

    Unwanted Events and Side Effects in Cognitive Behavior Therapy, 2018, Schermuly-Haupt et al

    Yep totally agree cheap CBT will continue to be used because they will find ways to cut the staff involvement with clients to make it cheaper and...
    Post by: NelliePledge, Aug 18, 2018 in forum: Other psychosomatic news and research
  7. NelliePledge
    Post

    Home-based family focused rehabilitation for adolescents with severe Chronic Fatigue Syndrome, 2018, Burgess et al (inc Chalder)

    @Hutan shows how good their grasp on stats is if they can get several out of 6........... she'll be saying they all recovered when she meant...
    Post by: NelliePledge, Aug 18, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. NelliePledge
    Post

    Dietary carbohydrate intake and mortality: a prospective cohort study (Lancet)

    this really is fake news
    Post by: NelliePledge, Aug 18, 2018 in forum: Other health news and research
  9. NelliePledge
    Post

    Illness beliefs of adolescents with CFS and their parents: the perceived causes of illness and beliefs about recovery, 2018,Loades et al (inc Chalder)

    guess your prognosis - who does she think they are, Mystic Meg (we need a crystal ball emoji)
    Post by: NelliePledge, Aug 18, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. NelliePledge
    Post

    Dietary carbohydrate intake and mortality: a prospective cohort study (Lancet)

    does any low carb diet really suggest replacing all the carbs with meat?? I eat more eggs and probably a fair bit more meat and dairy (goat/sheep...
    Post by: NelliePledge, Aug 18, 2018 in forum: Other health news and research
  11. NelliePledge
    Post

    Unwanted Events and Side Effects in Cognitive Behavior Therapy, 2018, Schermuly-Haupt et al

    I had IAPT CBT which wasnt supportive Ive mentioned before it was like a sausage machine lowest common denominator. The youngish woman was...
    Post by: NelliePledge, Aug 17, 2018 in forum: Other psychosomatic news and research
  12. NelliePledge
    Post

    Unwanted Events and Side Effects in Cognitive Behavior Therapy, 2018, Schermuly-Haupt et al

    omg I was googling to see if I could find this adverse events checklist mentioned in the paper and see what it involves maybe why couldnt the...
    Post by: NelliePledge, Aug 17, 2018 in forum: Other psychosomatic news and research
  13. NelliePledge
    Post

    Dr Myhill’s complaint to GMC about PACE authors.

    leaving work due to ill health shouldnt be such a lottery @It's M.E. Linda Im sorry about that. I hadnt started engaging with benefits when I put...
    Post by: NelliePledge, Aug 17, 2018 in forum: General ME/CFS news
  14. NelliePledge
    Post

    Invisible disabilities: perceptions and barriers to reasonable accommodations in the workplace

    what is generally missing in discussion of reasonable adjustments is that there shouldnt be a presumption that reasonable adjustments can solve...
    Post by: NelliePledge, Aug 17, 2018 in forum: Work, Finances and Disability Insurance
  15. NelliePledge
    Post

    Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in CFS, 2018, Barnden et al

    ok so would it be correct to say in really really basic terms this is the opposite of what happens in MS because MS folks lose myelin whereas we...
    Post by: NelliePledge, Aug 17, 2018 in forum: ME/CFS research
  16. NelliePledge
    Post

    Dr Myhill’s complaint to GMC about PACE authors.

    maybe your case presents issues they are struggling to find a way of not investigating?
    Post by: NelliePledge, Aug 17, 2018 in forum: General ME/CFS news
  17. NelliePledge
    Post

    Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in CFS, 2018, Barnden et al

    is this telling us anything new?
    Post by: NelliePledge, Aug 17, 2018 in forum: ME/CFS research
  18. NelliePledge
    Post

    'Denialism: what drives people to reject the truth' by Keith Kahn-Harris

    as someone who has gradual onset ME borderline of mild/moderate and had it for possibly 10 or more years undiagnosed it is impossible for me to...
    Post by: NelliePledge, Aug 17, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  19. NelliePledge
    Post

    The Conversation: Why CBT should stop being offered to people with schizophrenia

    I see @Graham has added a comment on there about ME & CBT:thumbup:
    Post by: NelliePledge, Aug 17, 2018 in forum: Other psychosomatic news and research
  20. NelliePledge
    Post

    Who was it that said being in support groups leads to poor outcome?

    if they want to talk about maladaptive beliefs and behaviours this is what they should focus on - patients are having to either A consciously...
    Post by: NelliePledge, Aug 17, 2018 in forum: General Advocacy Discussions
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