Good to see our top scientists weighing in again against more dodgy research
Which could well be why this CFS clinic is closing. It isn’t the only one in the country closing. A lot of areas point people to generic pain...
MEA also posted about B12/NICE blog...
I think there are already many websites Facebook groups and forums. Would suggest working with #MEAction
They reorganise all the time I don’t see why the existing funding currently going on CFS/ME or MUS clinics can’t be stopped and reallocated to a...
It just came to my mind today to set up the UK biomedical ME clinics of the future it will definitely not be a simple revamp job on the current...
Latest update from Craig Robinson on Facebook that 85 letters now received
Yep that’s where Dr M is coming from & she recommends Vit C as a good way to address it. I think she might say more than the amount I take but I...
I have sore croaky throat a lot. When I get my worst level of PEM flu like symptoms always a sore throat involved sometimes to the extent of...
Clueless What sort of reward is trying to work with this illness you can’t even manage a few hours a week after 2 years then you speak to a Dr...
I understand the point you’re making LD I don’t know about kids but there are some people with ME who are overweight/obese not least because of...
Straight out of AFME
I thought it sounded like he was putting the cart before the horse.
https://www.martynhooper.com/2018/02/10/chronic-fatigue-syndrome/ This was posted in one of the Facebook groups I’m in. Martin Hooper is...
Whatever age gender or nationality the thing they have in common is they all think they’re emperors but they are walking around naked and it’s...
Cognitive Rehabilitation Activity Pacing
Interesting- the MUS people including TMJ on their long list of conditions- they really are looking to take over the world
As with pacing something potentially useful is twisted and made to work against patients interest to serve the establishment agenda
This is what they currently do in the CFS/ME group programmes. You have sessions about topics like diet or communication that aren’t actually...
I’ve been one one of these group programmes the activity management aspect is where they encourage you to increase activity there’s a risk there...
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