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Thank you @It's M.E. Linda. :)

Thanks very much @Andy.

Oh boy. Well, it seems to be pretty much the same here in Canada. ETA: I googled "internal market". The European/Common market came up. But do you mean Brexit? Maybe not supposed to get into this political stuff. At any rate, it's all a mess everywhere.

Thanks for your reply @rvallee. Granted, the "authorities" are the physiotherapists at that hospital. However, I would hope there is some monitoring function by NHS, or other higher level organization. Although, having experienced numerous problems with the Canadian health care system, I am...

I wonder if this specialized MRI has been used to look at ME. Probably not.

My response to exertion, is to feel faint, and have burning muscle pain within a few minutes. I also feel weaker, become uncoordinated and brain foggy. I guess that's a "normal" reaction to exercise/exertion. :mad:

Agreed. The dismissal and omission of serious symptom reactions to exertion is out of date and out of touch to say the least. This needs to be reported to authorities.

This surface understanding of ME is discouraging. Especially since the changes to NHS info. It is concerning that these hospital staff are not following NHS guidance on ME.

Thank you for pointing out the circular nature of research and thinking about ME. An n=1 example, but I too, along with my husband thought about lack of oxygen in the 1990s. Many, many times we both noted my blue tinged lips and wondered if supplemental oxygen might help. Amazing how doctors...

Excellent point @hinterland. What else is going to be appropriated? PEM?

Comprehending complicated articles with contrasting points and lots of detail is difficult and frustrating. The on the one hand this, but on the other hand that type of writing or points, sometimes leaves me confused. This example is hard to explain. @Peter Trewhitt, I don't know about you...

I had the same automatic reaction about the masks: I'd go to take off the mask when entering a building. When I am checking the Guide or Recordings on the TV, I have to mute the sound, otherwise I can't concentrate. And, same for me, what I define as multi-tasking are situations pwoME may find...

:p

Maybe input from stimulus gets a little crossed up. I don't know. There's been studies on how people in general aren't as good at multi-tasking as we think we are. IME, n=1, multi-tasking is not all that successful.

I turn off the light in our laundry area to start the washer or dryer. They don't start....:banghead: I sometimes forget sequences of tasks or get them in the wrong order. Even some of the steps in making tea can be left undone. If I concentrate I do it right, but if I'm not concentrating it...

Interesting David Berg's work has come up again. Unfortunately, studies are always small, which never gets us to a definitive conclusion.

It's difficult for me to define, but I agree with the ME experts I've read, brain fog (BF) includes problems with memory, concentration, and comprehension. The article doesn't seem to convey brain fog as devastating. Which it is for at least some pwME including me. The struggle and fight to...

I thought that was the case; just systolic was important. That's the impression we may get because that seems to be the focus. In prep for a surgery I provided systolic BP numbers for a specialist, who told me the diastolic was required too. It would be helpful if medical messages on basic...

My diastolic pressure is fairly consistently higher than it should be. Systolic is pretty good. I had a supine vs. standing HR test with exactly the same values for both positions. About 30 to 45 minutes after a treadmill test I almost fainted. Unfortunately this was after I left the test...

From the Background in this article: "Common laboratory tests are often unrevealing." Absolutely true. " I can't find anything wrong." Tragic, really to be told this over and over again. Many with this terribly debilitating disease have heard this phrase that dead ends investigations into...