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Thanks @Kitty In Canada some physio is done in hospitals, and the government pays for it. Otherwise, at least where I live, lots of physio is done in private practice, and patients pay. Physio fees are pretty high, and especially if there aren't any health improvements.

And, they charge lots of money.

I would suggest getting copies of any documents, tests etc. And checking them. I heard one medical practitioner on the radio say that medical errors in ERs are likely up during the pandemic. Perhaps this is the case across all aspects of Medicine. It seems to be the case in other areas of...

It would be fantastic if everyone with LC was examined this thoroughly, instead of being fobbed off as neurotic, or benefit seeking. Wonderful to get effective treatment too. Same wishes for ME!!!

Agreed. Also disability/unemployment and resulting food insecurity. Another variable may be inability to prepare meals on a regular basis.

Great that you did that @Sly Saint. It's very interesting to re-visit the archives. However, it's also a frustrating and maddening reminder that the biomedical evidence of the day was not given credence.

Thanks @Mij for this. It looks interesting I will try to read it on my PC when I can sit upright. For now, it doesn't seem to want to expand so I can read it on my phone. I'm saying the above so you understand in case my final comments don't relate to the article: for years, post meals, my...

Agreed, very important to carefully consider time frames and how they affect diagnosis and treatment, as well as the impact on socioeconomic issues for a given population. However, on another point, I question whether "most patients" call this disease Myalgic Encephalomyelitis/Chronic Fatigue...

As well, if one has incorrectly self diagnosed ME with the misunderstanding there are benefits to this, if a genuine health condition comes along, there may be a tendency for this condition to be dismissed. Putting this person in a situation a number of pwME have experienced. ETA: ME is most...

Yes.

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I read Munchhausen's was debunked some time ago. But, unfortunately, it still seems to cling on. As someone with evidence based proof of disability from ME, I am insulted that ME is usually portrayed as a fake disease. ETA: a CBC article today talked about a family with an infant, who while...

"...fatigue as something aversive" 1) why is this a problematic belief? 2) in my pre-ME life I was very busy, and experienced fatigue; it was no big deal, except when I became hypothyroid, when even walking felt like moving through molasses 3) for me there is a big difference between fatigue...

I was told by a health care worker there is a prevalent attitude or belief that the public is not intelligent, in fact quite the opposite. I also heard this same opinion from another health care worker. From this n=2 sample, and my own experience, I would guess this opinion is fairly common...

An example of a negative phrase in a patient file is: Patient X claims to have such and such. The word "claims" casts doubt on the patient's credibility and character in general. It generates questions about the patient's motives. It implies many things.

Yes, recycling the funding announcements, a favorite trick of governments in Canada too Good to see this funding for these diseases.

Interesting study. The ME specialist I saw said IBS may develop before ME. Not, I think that IBS leads to ME. I believe there are many pwME without IBS. But the many paths one mountain concept may apply here. My own IBS became much more painful when the ME worsened.

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Good headline, @John Mac :p

Expectations, cause symptoms... If that's the cause and effect, I expect to win a big lottery....let's see what happens! :rofl:;):banghead: