@dave30th There's probably a few donors like me, who are holding out just to see if any matching campaigns get announced near the end like last...
Similar to the point Jonathan Edwards made, PACE receives focus for two reasons, its effect on government health policy and its share of research...
Thanks for all the replies, I think Boom & Bust is interesting to think about. Based on what I've read, the entire psychiatric CFS causation...
Yeah my carer who is 25 years older than me is much fitter. I've measured their HR for fun when I've had my equipment out and it's always better...
Graded Exercise Therapy, at least in the UK, comes with the advice that 'Boom & Bust' cycles of activity are an obstacle to the rehabilitation of...
Speculatively, if an AFME advisor acted outside of their remit/authority to speak on behalf of the charity, that could be enough to justify the...
Thanks Clare. I think the question that follows would be, which Doctors/Researchers held AFME advisory positions at the time and would agreement...
From the BPS perspective, the patient has adopted a maladaptive sickness role following the remission of a viral or similar temporarily disabling...
Anyone can take that data set and run exactly the same calculations. There's nothing misleading about it. It's in an XLS sheet. You run the...
I totally get that. I find sitting up straight both exhausting and painful. The majority of my time is spent in bed, lying back propped up on a...
Thanks Trish, that's a really comprehensive reply. I did actually get an OT assessment a few years back, I have everything else around the home,...
After a recent bad relapse, I've come to the decision that I would like to try and apply for a wheelchair. I could of used one for a long time...
Hi all, I'm writing this account of my recent crash, as I would like to compare notes with others. It started during the bad weather, something...
I think Jonathan Edwards is right here to focus on what we do not know. To demonstrate the harm of GET beyond patient reports would require...
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