I did a private submission over zoom. It was easier than I thought. Disability Advocacy services are also funded to help people with their...
I am looking forward to reading those submissions when they are finally published!
I was rapt that they read and took on board the submissions to the Joint Parliamentary Committee by Emerge and ME/CFS Legal Resources Australia...
A huge thank you to our advocacy organisations and patient reps on the Committee. And thank you to those who helped promote the public...
Updated version is here: https://nhmrc.gov.au/myalgic-encephalomyelitis-and-chronic-fatigue-syndrome I am also guessing the NHMRC will update...
@dave30th I know you can't see this as you are blocked - I really think paranoia is setting in. [MEDIA]
Whatever name is finally selected we need to have a plan to migrate people diagnosed with CFS to the new name. In Australia it is extremely hard...
How is it going @Paradoxfloss. Have you been able to contact the advocacy agency Greg mentioned? I have been thinking of you and hoping that the...
Interesting conclusion: In conclusion, the DMN in CFS/ME is abnormal with more irregular activity, weaker connectivity, and more complex...
and the reference to this study has also been removed: 282. Moss-Morris R, Sharon C, Tobin R, et al. A randomized controlled graded exercise...
Under Evidence Scores in the new version this has been removed: Graded exercise therapy and overall improvement: there is poor-quality evidence...
Apparently there is new version of the document (updated in the last month): Update: Nov 13th We wrote this post based on a version of the guide...
If a heart rate monitor was to listen for the second when a it goes above a limit it could be going off every few seconds if your heart rate is...
I have just brought the Fitbit Ionic. It was pricy but I have programmed an app for it that checks for heart rate zones based on the principles of...
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