More on this theme, just published....
As someone repeatedly misdiagnosed with FND, and having been hostile to the diagnosis (with good reason), i find the comments from FND patients...
I wanted to add that I was diagnosed with high blood pressure in recent years and at no point have I had any doctor say anything about any...
“Er…so…erm..FND is caused by lots of things…or everything….or maybe nothing. I dunno. We dunno. BUT we are confident we know what causes it and...
Has anybody else listened to this yet? There’s a lot in there that is revealing. I think we all can see what’s going on here and the problems...
I can’t find it either. I have a (very cheap) sub.
This study is one that addresses the above point: Insights From Invasive Cardiopulmonary Exercise Testing of Patients With Myalgic...
Also by Dr Kane. Two quotes in a row from sympathetic doctors that are frustrated by how the status quo lets down patients, that’s reassuring to see.
It is not used to indicate that via the mechanism of the dysfunction of the autonomic nerves that control the constriction of veins (constricting...
[MEDIA] A lecture on FND by the guest on the above podcast, the neurologist Dr Matthew CL Philips. This is also another absolute goldmine. I...
I just wanted to point out a few things that go beyond me reacting to your quote, and to look at the podcast itself. Firstly, the podcast is...
If…sick people…tell you the ways in which they are sick….you should immediately conclude that it’s all in their head. Ah, yes. Yes of course....
Just incredible, really. But for anyone from the outside who is sceptical about how astonishingly sloppy and unscientific diagnostic practices...
Did Army Blast Exposure Play Role in Maine Gunman’s Rampage?
I got really irritable when I saw that Jon Stone and the FND crew had become part of this story back in 2021. I knew, of course, that...
Yes and that’s a very important point but even then it doesn’t get us over the line to where we want medicine to be, because using that language...
Whaaaaat? Say it ain’t so. I simply refuse to believe this could possibly happen. But seriously this is an infuriating account. It’s also an...
The map is not the territory. That line always comes back to mind for me. You don’t know the land by looking at a map of it. Doctors need to...
Lots of people on the Small Fibre Neuropathy (SFN) Facebook group I’m part of have received an FND diagnosis at some point in their journey. Some...
Separate names with a comma.
