Sidenote: The America’s Cup Race is the oldest international sporting competition in the world, begun in 1851 by the Royal Yacht Club. It was...
I definitely agree. I think these researchers are looking in the right place to get a handle on the neurological elements and dynamic of our...
I wonder whether impingement or impairment of the nerves involved with the autonomic nervous system, nerves which begin in the brainstem to my...
https://www.omf.ngo/wp-content/uploads/2019/09/2019-MECFS-Clinician-Summit-Post-Summit-Announcement.pdf...
This is the most exciting discussion I have read lately.
I have been on 4.5 mg for 9 months and it has done nothing at all except produce some sleep disturbance. I will be very interested to learn why...
@Jonathan Edwards makes the point that there is no evidence that ME/CFS is an inflammatory disease. My own lack of any discernible benefit from...
Impaired/slowed signalling from the brainstem is a finding/theme in the work of Leighton Barnden and also Michael VanElzakker. I wanted to bring...
I would strongly second an interest in more brain stem studies as that is where I believe some key information can be found relating to slow...
Without remembering the exact details and words in that part of the presentation, I think the idea was that if it is a virus, it is a « genius »...
I was at the Symposium and happened to read this, so I asked Maureen directly if she believed that the cause is a virus. She made a point of...
Infantilizing—is one way to put this. The fact that most of us are female is the reason this happens, as females in sexist, unconscious cultures...
I found Naviaux’s long paper well worth reading, as hard as it was without an education in medical science. I could only tackle it on a good day,...
That is interesting. Though most of my body is usually cooler than other peoples, if not outright cold, I like ice water too and find it makes me...
I expect that the scientists among themselves in all their meetings and conversations probably discussed and maybe answered some of our question....
When I was young, people might wear an ice bag designed for the purpose on the tops of their heads when they had a fever. You would just put in...
Yes, and I would enjoy meeting any other patients who will be there. What about a signal, since we won’t be seated in a particular area or have...
I have had a dry eye problem since nearly the start of this illness 22 years ago. I learned to treat it with a boric acid eyewash I make myself. I...
Isn’t that amazing—a doctor who outright refuses to see ME patients! Is that even legal?
I got diagnosed with SFN some years back and later went to a neurologist specializing in dysautomia. In the video, Dr. Systrom recommended that...
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