Thanks for your feedback @Andy and @Trish !! Taken into account. With regards to Unrest feeling "very American" I do think that the film helped...
Thanks Nellie! We are updating all our databases and working on next steps to lobby MPs and engage the community and local advocates. As has been...
Huge congratulations to Evelien and Francis, this is a huge achievement. Evelien, your speech was amazing and the committee's response is at least...
Yes, exactly as @Gecko said. Thank you all!
Thank you ALL for the support, encouragement, organising, volunteering and everything in between in the lead-up and during #MillionsMissing and...
Appreciate all comments and the discussion here. As @Andy put it, we are "giving a platform for anybody with ME to tell their unique individual...
That would be good and something I think Tymes Trust can help us all with.
Quite right. Our latest info clearly states that recovery is rare, in the context of all pwME. See more here and here
If you liked our article, please send big thanks to Adriane Tillman and @JaimeS l!!
NO worries at all Trish, I didn't take as a criticism :) No coordinated plans behind the scenes as of now, I am afraid. Have a good weekend and...
Hi Trish! Noted, we are working, very very hard, on additional things. As a patient network organisation, we would welcome anyone that wants to...
OH I wish Adam but we don't simply have the capacity. We look like we have 20 people on staff but it's not like that :S But thanks for the input,...
Hi! Yup, I am the UK Coordinator for #MEAction. The rest of the team in the UK is volunteer-based :) We are doing the best we can and we have been...
Noted @Sly Saint ! Though if I'm not mistaken Mental Health awareness week is a week before ME awareness week. That does not mean that the press...
Thanks so much Andy!! <3 Better, bigger and with the focus in the UK & Scotland on increasing funding on biomedical research! Please do join us or...
Hi there Hi there @obeat! We are working on this, will have some news in the next few months, hopefully! This is something we'd very much like...
Hi again, Yes, they were briefed on this, either by us, constituents or other charities. We targeted MPs based on their level of support to ME...
Heya! The MPs were fully briefed and even while we cannot foresee what sort of discussions might take place during a HOC debate, we tried our...
Hello! Noted. I am not sure Brine's response would have been any different if we have added that. Agreed it would have been useful, but all MPs...
It might go for up to 3 hours starting from 2/2.30pm (parliamentary business allowing that starting time!). Last WOW debate was delayed by several...
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