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  1. EspeMor
    Post

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    Thank you all for the feedback, it has been noted and we will try to fix before the debate, but as you can imagine, there are quite a lot of...
    Post by: EspeMor, Jan 21, 2019 in forum: General ME/CFS news
  2. EspeMor
    Post

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    Working on it and it will be published by tomorrow at the latest! Not a lot of time but plenty still! ;)
    Post by: EspeMor, Jan 17, 2019 in forum: General ME/CFS news
  3. EspeMor
    Post

    Forward-ME Group Minutes – 21st November 2018

    The survey has been launched now. You can take it here: https://brookeshls.co1.qualtrics.com/jfe/form/SV_cwGfVEpqF7CmdTL And read more about it...
    Post by: EspeMor, Jan 11, 2019 in forum: Advocacy Projects and Campaigns
  4. EspeMor
    Post

    Forward-ME Group Minutes – 21st November 2018

    We certainly will, as well as the rest of the charities :)
    Post by: EspeMor, Jan 11, 2019 in forum: Advocacy Projects and Campaigns
  5. EspeMor
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Sasha, you're SO right. I have messaged the admin of that page! Cheers!
    Post by: EspeMor, Dec 18, 2018 in forum: ME/CFS research
  6. EspeMor
    Post

    Carol Monaghan has applied for a debate in UK House of Commons main chamber

    just to add: If you have any questions or suggestions, do email me! -> espe@meaction.net I AM HAPPY to chat and exchange private emails with you...
    Post by: EspeMor, Nov 27, 2018 in forum: General ME/CFS news
  7. EspeMor
    Post

    Carol Monaghan has applied for a debate in UK House of Commons main chamber

    Dear Barry and friends, This was posted on social media, via Facebook and Twitter, by both charities as it was communicated at the time, in GOOD...
    Post by: EspeMor, Nov 27, 2018 in forum: General ME/CFS news
  8. EspeMor
    Post

    Reply from Nice

    This not the adequate response to 10 emails or 2,000. Each email needs careful attention and handling. YES, there's a template, but people have...
    Post by: EspeMor, Nov 22, 2018 in forum: General ME/CFS news
  9. EspeMor
    Post

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    #MEAction is currently working flat out on how to address this, from all possible angles. So we are here ;)
    Post by: EspeMor, Oct 30, 2018 in forum: 2020 UK NICE ME/CFS Guideline
  10. EspeMor
    Post

    Backbench Business Committee for next Parliament debate

    Excellent news! The meeting yesterday was really productive and Carol was in superb form. Crossing fingers and toes!
    Post by: EspeMor, Oct 23, 2018 in forum: General ME/CFS news
  11. EspeMor
    Post

    [UK] #MEAction, Meet with your MP about ME – Our Toolkit shows you how!

    Also just to let you guys know that we are working on new online tools to help you take action with us and MPs without having to meet in person or...
    Post by: EspeMor, Oct 17, 2018 in forum: Advocacy Projects and Campaigns
  12. EspeMor
    Post

    [UK] #MEAction, Meet with your MP about ME – Our Toolkit shows you how!

    Thanks so much! Yeah, we should look into this and see how we might be able to incorporate something like this :)
    Post by: EspeMor, Oct 17, 2018 in forum: Advocacy Projects and Campaigns
  13. EspeMor
    Post

    [UK] #MEAction, Meet with your MP about ME – Our Toolkit shows you how!

    Thanks for the feedback Sasha, much appreciated. Working on this to see what we can put together :)
    Post by: EspeMor, Oct 17, 2018 in forum: Advocacy Projects and Campaigns
  14. EspeMor
    Post

    [UK] #MEAction, Meet with your MP about ME – Our Toolkit shows you how!

    I understand Sasha. Have the call to actions to urge MPs to attend debates been more helpful for you? I'm just trying to figure out the best way...
    Post by: EspeMor, Oct 14, 2018 in forum: Advocacy Projects and Campaigns
  15. EspeMor
    Post

    [UK] #MEAction, Meet with your MP about ME – Our Toolkit shows you how!

    Hi! In this case, some people opt for a group meeting. Often they might arrange it via #MEAction local groups on FB so others can convey your...
    Post by: EspeMor, Oct 12, 2018 in forum: Advocacy Projects and Campaigns
  16. EspeMor
    Post

    [UK] #MEAction, Meet with your MP about ME – Our Toolkit shows you how!

    Hope you guys find it useful! Espe x
    Post by: EspeMor, Oct 12, 2018 in forum: Advocacy Projects and Campaigns
  17. EspeMor
    Post

    Donate to the £55k fundraiser for a UK #MEAction organiser!

    Thanks for the tip Andy, will do! :)
    Post by: EspeMor, Sep 20, 2018 in forum: Fundraising
  18. EspeMor
    Post

    Donate to the £55k fundraiser for a UK #MEAction organiser!

    Thanks Andy, it's great to be here!! :)
    Post by: EspeMor, Sep 19, 2018 in forum: Fundraising
  19. EspeMor
    Post

    Donate to the £55k fundraiser for a UK #MEAction organiser!

    Hi all! It's Espe here! It's a pleasure to meet you all and looking forward to making a huge difference in the community. THANK YOU for your...
    Post by: EspeMor, Sep 19, 2018 in forum: Fundraising
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