Yes, I used to struggle with both pen grip and writing the letters in the wrong order due to cognitive problems. I'm not dyslexic - this problem...
An online session, while a great idea, is not as accessible as a survey and will reach a smaller audience. Could you do a survey as well perhaps?...
It would be good if they put out an online survey so people can give ideas as most people won't be able to go to the meeting in person.
I don't know how to say this tastefully (sorry), but I think Dr Myhill peddles pseudoscience. Whether that is her intention or whether she...
Curiously my ME has never caused headaches. I do get mild headaches now but they are a side effect of my POTS medication. When I'm not medicated...
Having just tried corticosteroids, I am wary of research suggesting that low cortisol might be causing ME symptoms. My reaction to a relatively...
My experience has been that adrenaline provides a temporary "boost" (as it is designed to do e.g. during fight or flight) but that in the long run...
Good luck, I hope the doctor can provide some useful suggestions!
I used to get a similar symptom. It was POTS-related blood pooling. Legs were not obviously swollen but I felt pressure in my legs as if they were...
OI definitely contributes to my crashes because since I've started taking medication for OI I crash less. However, going to appointments is also...
Studying has given me purpose too. I was in the first year of my PhD when I got ME, and I haven't stopped studying since. When I haven't been...
Thank you very much for clarifying, and glad to hear that there are several options. I would personally love to do this study, but I haven't...
It's part of a PhD programme which has a big patient and public engagement component. I think the idea of the programme is that the PhD students...
I think it's important to recognise that not all bacteria and viruses are the same. Many are harmless, some are pathogenic, some we get exposed to...
Surely vaccines don't affect immunity to mono, because there is no vaccine for mono. Whether or not someone gets mono in college is related to...
It looks like the project is proposed as one of a pool of potential PhD projects. Students apply to the programme and once accepted, who will do...
Oh thank you for clarifying - I am pleased that I filled out the questionnaire correctly then. I agree, the Biobank team are always extremely...
I can't remember which scale it is, but it's the one that asks whether you have been feeling 'in need of a good tonic'. It always makes me chuckle...
This is a good point, I think the questionnaires need to be clear about what they are asking. I remember when I was filling out the CURE ME...
I think the research team curating the data would have the right to screen applications for quality. I am pretty sure that's what the CURE ME team...
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