Option two would be unlawful unless all participants gave permission for their contact details to be shared, which won't happen, so option two...
Oh thanks Andy - sorry I didn't see your earlier comment or the GLAD study thread!
They just love a catchy title ;)
Example of a current GWAS study & recruitment strategy Apologies if people have seen this already. It is a study on anxiety and depression but...
Often the SMC have regurgitated press releases. The problem has often been that they have regurgitated those press releases written by Sharpe et...
Yup ☺️
Interesting. I get a fluey feeling immediately after minor exertion, as I am getting tired. But when I have a delayed PEM e.g. from a bigger...
Tha Thank you for your reply, and it's interesting to hear that you have had a similar experience. It has been ivabradine and low dose...
Do you mean that 'fluey' feeling that happens when you start getting tired? I think this issue is confounded by how the condition can change over...
Thank you Andy. Perhaps I'm just being over-anxious about this, but is the association that the GWAS will be looking for against the genes:...
Did they say why?
But I have said Multiple times that any additional questionnaires beyond those essential for the GWAS would be optional, and my idea would be that...
I see your point. I think, because as you say we don't know what will be included in the compulsory questionnaires, it would be best for the PIs...
The point is the extra questionnaires would be optional. Would people be put off by optional questionnaires? If they don't want to do the optional...
I think it would be a case of looking for any statistically significant associations between specific mutations and severity across the whole...
Ok, so I have had a think about it and I would like to propose selection of additional optional questionnaires, if possible, from the NIH Common...
Yes I think SF-36 would be good. I will have to think about others and get back to you. I think making the additional questionnaires optional and...
No I don't mean the usual ones used by the BPS crowd. I mean anything that could be helpful for either adding context which may aid the...
Thank you very much for your reply, this is good to hear! Aside from being "recontactable" (which will of course be a great resource for...
One solution to this for early career researchers interested in going in to ME research might be that they specialise in a field that can...
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