For me, my orthostatic intolerance contributes to my PEM, and when I am in PEM my orthostatic intolerance is worse (heart rate more spiky). I...
https://www.sciencedirect.com/science/article/pii/S0889159119307627
The full paper is up now - just read it!
Hi, I know this post is from a while ago but just wanted to say that I notice similar patterns in my HR, although I am much less active than you....
Also maybe see if one of those BBC show that focus on new technologies etc. would do a feature? Like 'Click' or ... I want to say Panorama but I'm...
I got recruited into the UK ME/CFS Biobank that way. They asked my GP practice to send a letter out to the patients on their register with an...
Thank you for sharing your thoughts. The thing I feel most strongly about, as a patient, is how unethical it is that current treatments (CBT, GET...
I saw this today, in case it is of interest to anyone? It would be good to have representatives from the ME community involved. Get involved in...
Ok, thank you for your reply!
Thank you for this - I was wondering about whether it would be useful to include relatives who both/all have ME to see whether they all have the...
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