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  1. jpcv
    Post

    The Current State of Knowledge on Baggio–Yoshinari Syndrome (Brazilian Lyme Disease-like Illness):..., 2022, Yoshinari et al

    Hi, I got a positive response from the university lab, I´ll collect the blood sample and send them.
    Post by: jpcv, Sep 5, 2022 in forum: 'Conditions related to ME/CFS' news and research
  2. jpcv
    Post

    The Current State of Knowledge on Baggio–Yoshinari Syndrome (Brazilian Lyme Disease-like Illness):..., 2022, Yoshinari et al

    Such a coincidence! last week I was talking to a fellow neurologist who , upon reviewing my symptoms, told me that I should have a blood test for...
    Post by: jpcv, Aug 29, 2022 in forum: 'Conditions related to ME/CFS' news and research
  3. jpcv
    Post

    Investigating Fatigue and Exercise Intolerance in a University Immunology Clinic, 2020, Ambrus et al

    I agree, I think the authors did a in depth study of fatigue and exercise intolerance , another positive points are the number of patients and the...
    Post by: jpcv, Oct 13, 2021 in forum: Other health news and research
  4. jpcv
    Post

    Event: Grand Rounds: Pathophysiology of Exercise Intolerance in Chronic Fatigue Syndrome Event Date: May 5th, 2020 David Systrom, MD

    The description of the 1975 outbreak is very interesting, he describes very well many symptoms that most of us have.
    Post by: jpcv, May 7, 2020 in forum: ME/CFS research news
  5. jpcv
    Post

    Why do we crash so quick when upright/sitting?

    I feel the same about sitting for a long rtime. i´ve discovered that if I take short breaks, like going for a short walk ( 2-3 MINUTES),I feel better.
    Post by: jpcv, Jan 24, 2020 in forum: Post-Exertional malaise and fatigue
  6. jpcv
    Post

    Signs of Intracranial Hypertension, Hypermobility and Craniocervical Obstructions in patients with ME/CFS (Pre-print 2019/published 2020) Bragée et al

    What´s CTD?
    Post by: jpcv, Dec 2, 2019 in forum: ME/CFS research
  7. jpcv
    Post

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Very interesting information, in both studies the patients had objective neurological signs and symptoms, my question is, could these findings be...
    Post by: jpcv, Dec 2, 2019 in forum: Recruitment into current ME/CFS research studies
  8. jpcv
    Post

    Skeletal Muscle Dysfunction. The Harvard ME/CFS Collaboration at Harvard-Affiliated Hospitals

    I think there is a group of Italians who have been studying the muscle in patientes with ME. It seems thet this was a very promisisng field of...
    Post by: jpcv, Sep 23, 2019 in forum: ME/CFS research
  9. jpcv
    Post

    Published comments on article: Komaroff, Advances in Understanding the Pathophysiology of ME/CFS

    Merged thread In the comment section in JAMA´s recent paper by Dr. Komaroff there is a very intriguing letter from a retired pysician. He says he...
    Post by: jpcv, Jul 23, 2019 in forum: General ME/CFS news
  10. jpcv
    Post

    K Pressin: new treatment for ME CFS(?) - video Dr Derek Enlander (25 June 2019)

    As some people here know, I´m a pwME and a medical oncologist. After getting sick in the winter of 2015, I started to dig in the world of a...
    Post by: jpcv, Jul 1, 2019 in forum: Other treatments
  11. jpcv
    Post

    Persistent Influenza A and Post-Viral Syndrome is keeping the 2x World Champ on the sidelines - March 2019

    She had na Influenza like infection...i do not know but it´s na interesting possibility
    Post by: jpcv, Apr 8, 2019 in forum: Other health news and research
  12. jpcv
    Post

    Persistent Influenza A and Post-Viral Syndrome is keeping the 2x World Champ on the sidelines - March 2019

    Another surfer, like me, goes down with this disease
    Post by: jpcv, Apr 3, 2019 in forum: Other health news and research
  13. jpcv
    Post

    Do you get post-exertional malaise from being outdoors?

    No.
    Post by: jpcv, Mar 8, 2019 in forum: Post-Exertional malaise and fatigue
  14. jpcv
    Post

    Myalgic encephalomyelitis or chronic fatigue syndrome: how could the illness develop?(2019) - G.Morris,Maes,Berk,Puri

    Would you care to elaborate a little bit?
    Post by: jpcv, Feb 18, 2019 in forum: ME/CFS research
  15. jpcv
    Post

    Anyone experience a numb feeling between toes on the sole side of feet?

    I do, exactly the way you describe it. It only appears when I´m having a crash. Weirdo
    Post by: jpcv, Jan 11, 2019 in forum: General and other signs and symptoms
  16. jpcv
    Post

    Recognizing leaky gut as a trans-diagnostic target for neuro-immune disorders using clinical chemistry & molecular immunology assays, 2018, Simeonova

    Could you find the full paper?
    Post by: jpcv, Nov 17, 2018 in forum: Other health news and research
  17. jpcv
    Post

    Brain glial activation in fibromyalgia – A multi-site positron emission tomography investigation (2018) Albrecht et al.

    Merged thread https://www.sciencedirect.com/science/article/pii/S0889159118302423?via=ihub#b0175 Very interesting article about neuroinflamation...
    Post by: jpcv, Nov 14, 2018 in forum: 'Conditions related to ME/CFS' news and research
  18. jpcv
    Post

    Merryn Crofts - media and inquest

    My two cents here: although her findings might not explain all her (ours)symptoms, they are one more piece of information in this puzzle called...
    Post by: jpcv, May 30, 2018 in forum: General ME/CFS news
  19. jpcv
    Post

    Myalgia, amitriptyline and alternatives

    I have myalgia too and duloxetin helped a lot , 60mg/day , with minimum side effects .
    Post by: jpcv, Apr 7, 2018 in forum: Pain and Inflammation
  20. jpcv
    Post

    Onset patterns of chronic fatigue syndrome and myalgic encephalomyelitis (2018) Evans & Jason

    I got sick in the middle of 2015, at that time I was feeling super healthy and I was very happy with my routine of surfing/swimming, yoga. Also, I...
    Post by: jpcv, Mar 14, 2018 in forum: ME/CFS research
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