haha! My dentist has ME confused with FM too. But at least she was really good about it, albeit if she actually had the wrong...
Just had my moderna half dose. Apparently they are all half doses. Had a right faff at the walk in centre. Got told I couldn't have it due to...
I think it's dead on that the immune system is the problem. I'm high as a kite for days after my covid vaccines. Probably 4 or 5 days. That's not...
@Ariel Thanks for that link. I was really struggling to find the data, even for healthy people, but that data for pwme is fairly easy to follow....
@Sisyphus I actually keep changing my mind. Dr Weir and Dr Jaeger seem to not be recommending vaccination for ME and LC patients for different...
Due to get my Pfizer booster early December. Really hoping for a less rough ride than the last two. Not sure I could deal with another 3 month...
I love how the symptoms sound horrendous like a call sheet for any major virus and yet they use tiredness to describe pem and general state of...
What worries me is that when a new variant comes along. We would need a new vaccine dose for that to cover it. The damage that ends up happening...
True I was sleepy for about 6 to 8 hours, then once I woke up the next day the hyper activity began. I wouldn't say I felt great, more like I...
Great thread this is. Had been wondering how people were getting on. Out of interest is anyone high as a kite for about 7 days after they get...
@Mij interesting. Thanks for the link. There's certainly lots of things it could mimic. Personally though based on several other experiments I've...
@Trish I guess there's a possibility it's pathogenic (pathogen causes the symptoms) and there's also a possibility based on studies that it could...
Forgot to add. When I'm in this state it doesn't matter how much water I drink. It makes no difference. Until the immune activation passes. 6...
I've noticed I only get dry mouth which lasts all day and all night if my immune system is activated and I don't mean because of a cold. My...
Well 2.5 weeks out from the flu jab and while my symptoms seem to be very under control I've lost a lot of stamina and strength physically and my...
In terms of the booster. A friend with FM who had it a very long time ago and reached 6 months last week was unable to book it and GP was unable...
Hi all, The day before my first vaccine az1 I was in clear remission in so many ways after some successful experiences with a protocol I am still...
My brain fogs got worse the last 6 months. I have periods where it's ok but I'm struggling. I work full time and find it really quite hard...
Has anyone ever done a study like this into hormone tests for the same number of ME patients and controls I wonder? Looking at thyroid hormones as...
Yes wasn't great for me. Maybe Valcyte would be different RE Lerner's oft recognised issue with some patients not doing well on Valtrex - but the...
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