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  1. Jacob Richter
    Post

    SequenceME genetic study - from Oxford Nanopore Technologies, the University of Edinburgh and Action for ME

    Good to see some media coverage on this: The medical breakthroughs to watch out for in 2025
    Post by: Jacob Richter, Jan 7, 2025 in forum: ME/CFS research news
  2. Jacob Richter
    Post

    Spontaneous, persistent, T cell–dependent IFN-γ release in patients who progress to Long Covid, 2024, Krishna et al

    Just to note that this study is covered in an article on the landing page of the Financial Times today: Anti-viral protein found to be important...
    Post by: Jacob Richter, Feb 21, 2024 in forum: Long Covid research
  3. Jacob Richter
    Post

    Targeted depletion of TRBV9+ T cells as immunotherapy in a patient with ankylosing spondylitis, 2023, Chudakov et al

    I found this very interesting - thanks for laying it out so clearly. Do you have thoughts on what an initial/small study could look like to test...
    Post by: Jacob Richter, Feb 7, 2024 in forum: Other health news and research
  4. Jacob Richter
    Post

    Persistent complement dysregulation with signs of thromboinflammation in active Long Covid, 2024, Boyman et al

    NBC News has just run a story on this: Long Covid study reveals major insights on a potential cause (nbcnews.com)
    Post by: Jacob Richter, Jan 19, 2024 in forum: Long Covid research
  5. Jacob Richter
    Post

    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    The Times has an article on this study today, which includes mention of ME. Long Covid changes your muscles, scientists find (thetimes.co.uk)...
    Post by: Jacob Richter, Jan 5, 2024 in forum: Long Covid research
  6. Jacob Richter
    Post

    Cardiopulmonary and hematological effects of infrared LED photobiomodulation in the treatment of SARS-COV2, 2023, Pereira et al

    Thanks everyone for all the replies and perspectives - useful as always in putting the study's conclusions into context.
    Post by: Jacob Richter, Jan 1, 2024 in forum: Epidemics (including Covid-19, not Long Covid)
  7. Jacob Richter
    Post

    Cardiopulmonary and hematological effects of infrared LED photobiomodulation in the treatment of SARS-COV2, 2023, Pereira et al

    On a related note to the studies mentioned above, I wonder if anyone has a view on the clinical trial conducted for laser light therapy in...
    Post by: Jacob Richter, Dec 30, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  8. Jacob Richter
    Post

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Do you know if a recording of this will be made available? Thanks!
    Post by: Jacob Richter, Nov 1, 2023 in forum: News from organisations
  9. Jacob Richter
    Post

    Patient and Public Involvement opportunities in ME/CFS and other research

    Welcome to the forum Audrey and best of luck with your project.
    Post by: Jacob Richter, Oct 3, 2023 in forum: ME/CFS research
  10. Jacob Richter
    Post

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    In case useful as background context for those attending, here's the list of all active NIH research projects in ME/CFS that are NOT run out of...
    Post by: Jacob Richter, Aug 21, 2023 in forum: News from organisations
  11. Jacob Richter
    Post

    Cutaneous α-Synuclein Signatures in Patients With Multiple System Atrophy and Parkinson Disease, 2023, Gibbons et al

    Thanks Hutan for these v helpful pointers.
    Post by: Jacob Richter, Aug 15, 2023 in forum: Other health news and research
  12. Jacob Richter
    Post

    Cutaneous α-Synuclein Signatures in Patients With Multiple System Atrophy and Parkinson Disease, 2023, Gibbons et al

    Hello all, this study came onto my radar after reading the following media article on the search for a biomarker and treatments for Long Covid,...
    Post by: Jacob Richter, Aug 14, 2023 in forum: Other health news and research
  13. Jacob Richter
    Thread

    Cutaneous α-Synuclein Signatures in Patients With Multiple System Atrophy and Parkinson Disease, 2023, Gibbons et al

    Title: Cutaneous α-Synuclein Signatures in Patients With Multiple System Atrophy and Parkinson Disease Authors: Christopher Gibbons, Ningshan...
    Thread by: Jacob Richter, Aug 14, 2023, 5 replies, in forum: Other health news and research
  14. Jacob Richter
    Post

    Plasma metabolomics reveals disrupted response and recovery following maximal exercise in ME/CFS, Arnaud Germain, Maureen R. Hanson et al, 2022

    That is certainly my experience.
    Post by: Jacob Richter, Jul 2, 2023 in forum: ME/CFS research
  15. Jacob Richter
    Post

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    This is excellent, thank you Joan for writing it.
    Post by: Jacob Richter, Jul 2, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  16. Jacob Richter
    Thread

    Locus for severity implicates CNS resilience in progression of multiple sclerosis, 2023, MS consortia

    Post copied from the DecodeME thread: I agree the 85% response rate is fantastic - unheard of really. Decode ME is such a brilliant study. On a...
    Thread by: Jacob Richter, Jun 29, 2023, 6 replies, in forum: Other health news and research
  17. Jacob Richter
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I agree the 85% response rate is fantastic - unheard of really. Decode ME is such a brilliant study. Posts about the MS study discussed below...
    Post by: Jacob Richter, Jun 29, 2023 in forum: Recruitment into current ME/CFS research studies
  18. Jacob Richter
    Post

    Building the ideal ME/CFS research institute

    Thank you to everyone who has posted - especially the longer posts which really get to the heart of the challenge and which I suspect reflect...
    Post by: Jacob Richter, Jan 20, 2023 in forum: ME/CFS research
  19. Jacob Richter
    Thread

    Building the ideal ME/CFS research institute

    Dear all, I'm keen to sound out opinion on what the ideal ME/CFS research institute would look like. Much of the forum discussion is (rightly)...
    Thread by: Jacob Richter, Jan 18, 2023, 25 replies, in forum: ME/CFS research
  20. Jacob Richter
    Post

    [Preprint] The central nervous systems proteogenomic and spatial imprint upon systemic viral infections with SARS-CoV-2, 2023, Radke et al

    Thanks for sharing. I find this area of research hard to follow in the details as a non-expert but my intuitive sense/lived experience of ME/CFS...
    Post by: Jacob Richter, Jan 18, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
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