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  1. Jacob Richter
    Post

    Tonsils, Appendixes, Gall Bladders and ME/CFS

    This is an interesting area. Does the DecodeME project gather data through the online form on past hospital operations like removing appendixes or...
    Post by: Jacob Richter, Oct 29, 2022 in forum: Possible causes and predisposing factor discussion
  2. Jacob Richter
    Post

    Markers of fungal translocation are elevated during post-acute sequelae of SARS-CoV-2 and induce NF-κB signaling, 2022, Giron et al

    Does anyone with more medical knowledge than me know what "fungal translocation" really means in this context? Any views on the credibility and/or...
    Post by: Jacob Richter, Jun 22, 2022 in forum: Long Covid research
  3. Jacob Richter
    Post

    Neurovascular Dysregulation and Acute Exercise Intolerance in ME/CFS: A Randomized, Placebo-Controlled Trial of Pyridostigmine, 2022, Systrom et al

    Thanks so much for this - really interesting. I also strongly second Chris's point above - namely that muscle "weakness and "malaise" are...
    Post by: Jacob Richter, May 6, 2022 in forum: ME/CFS research
  4. Jacob Richter
    Post

    Neurovascular Dysregulation and Acute Exercise Intolerance in ME/CFS: A Randomized, Placebo-Controlled Trial of Pyridostigmine, 2022, Systrom et al

    Am I right in thinking that this study essentially builds on the following more anecdotal study done back in 2003:...
    Post by: Jacob Richter, May 6, 2022 in forum: ME/CFS research
  5. Jacob Richter
    Post

    Long Covid in the media and social media 2022

    The Economist leads its mailshot today with a new article on Long Covid:...
    Post by: Jacob Richter, Apr 30, 2022 in forum: Long Covid news
  6. Jacob Richter
    Post

    Longitudinal analysis reveals high prevalence of Epstein-Barr virus associated with multiple sclerosis, Bjornevik et al (2022)

    FYI the Guardian has a long piece today on the paper published in Science: Can we vaccinate against Epstein-Barr, the virus you didn’t know you...
    Post by: Jacob Richter, Mar 20, 2022 in forum: Other health news and research
  7. Jacob Richter
    Post

    Rare variant contribution to human disease in 281,104 UK Biobank exomes, 2021, Wang et al

    Thank you.
    Post by: Jacob Richter, Jan 10, 2022 in forum: Other health news and research
  8. Jacob Richter
    Post

    PaxMedica Plans to Initiate Phase 1B Study for PAX-101 (Suramin) in Patients with Long COVID-19 Syndrome

    Agree with the comments above. I suppose small biotech companies like PaxMedica have an interest in conflating Long Covid and ME/CFS because it...
    Post by: Jacob Richter, Jan 10, 2022 in forum: Long Covid news
  9. Jacob Richter
    Post

    ME/CFS progression in years and stages

    Thanks for this post - this is the truest thing I have read on ME.
    Post by: Jacob Richter, Jan 4, 2022 in forum: Epidemiology (incidence, prevalence, prognosis)
  10. Jacob Richter
    Post

    ME/CFS progression in years and stages

    Thanks for this thread Rosie - I find it useful and I guess different people will draw different things from the various examples. 11 years 3...
    Post by: Jacob Richter, Jan 4, 2022 in forum: Epidemiology (incidence, prevalence, prognosis)
  11. Jacob Richter
    Post

    Rare variant contribution to human disease in 281,104 UK Biobank exomes, 2021, Wang et al

    I hope this question isn't too far off topic, but in today's Financial Times there's a detailed article on Long Covid (link below) which says...
    Post by: Jacob Richter, Jan 4, 2022 in forum: Other health news and research
  12. Jacob Richter
    Post

    Open Pilot Study: A Novel Transcranial Magnetic Stimulation Treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    I suspect they think of ME as a cousin of treatment-resistant depression and are exploring whether something similar to electroconvulsive therapy...
    Post by: Jacob Richter, Dec 10, 2021 in forum: Recruitment into current ME/CFS research studies
  13. Jacob Richter
    Post

    UK: Priority Setting Partnership for ME/CFS

    Completely agree - the key questions all relate to identifying the underlying mechanism, everything else follows from that. Thanks for sharing...
    Post by: Jacob Richter, Dec 2, 2021 in forum: Advocacy Projects and Campaigns
  14. Jacob Richter
    Post

    Use of whole genome sequencing to determine genetic basis of suspected mitochondrial disorders: cohort study, 2021, Schon et al.

    Thanks very much for this reply - useful to know.
    Post by: Jacob Richter, Nov 8, 2021 in forum: Other health news and research
  15. Jacob Richter
    Thread

    Use of whole genome sequencing to determine genetic basis of suspected mitochondrial disorders: cohort study, 2021, Schon et al.

    Posts moved from this thread: Trial of Long Covid treatment - AXA1125 from Axcella Therapeutics, 2021 ________________ Use of whole genome...
    Thread by: Jacob Richter, Nov 6, 2021, 7 replies, in forum: Other health news and research
  16. Jacob Richter
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Thanks - this is very interesting. If there are forum members with medical knowledge/experience (I personally have none) who are also interested...
    Post by: Jacob Richter, Nov 2, 2021 in forum: Blood (e.g. coagulation, cell stiffness)
  17. Jacob Richter
    Post

    Compression Garments

    Thanks very much.
    Post by: Jacob Richter, Sep 23, 2021 in forum: Orthostatic intolerance treatments
  18. Jacob Richter
    Post

    Compression Garments

    Does anyone know of a good place to shop for this kind of compression gear? Thanks.
    Post by: Jacob Richter, Sep 23, 2021 in forum: Orthostatic intolerance treatments
  19. Jacob Richter
    Post

    The Atlantic: Long Covid is everyone's problem, 2021, Ed Yong

    It really is excellent. I've emailed the author today to say so - power to his elbow. I'm not aware of any comparable long-form journalism in...
    Post by: Jacob Richter, Sep 1, 2021 in forum: Long Covid news
  20. Jacob Richter
    Post

    2021: Communications between NICE and the S4ME management committee about the paused NICE ME/CFS guideline

    Thank you. However I don't want to create more work - I can always just print out the text if a more 'formal looking' version under letter...
    Post by: Jacob Richter, Aug 31, 2021 in forum: 2020 UK NICE ME/CFS Guideline
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