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A post on an article about research integrity by Richard Smith, 'cofounder of the Committee on Medical Ethics (COPE), for many years the chair of the Cochrane Library Oversight Committee, and a member of the board of the UK Research Integrity Office' has been moved to its own thread here.

Setting aside the major problem of the convenience sampling: They say that there really was no difference between the two groups in mindfulness: And psychological flexibility scores were similar between the two groups too. I didn't see this point in the discussion, but I note that the...

It's basically an advertisement wrapped around baseless speculation: This is the basis of deciding that PoCoS is a central sensitisation syndrome: They are saying no more than: other infectious diseases produce prolonged post-infectious syndromes, and PoCos looks like those. And we...

:rofl: Oh, that's the best name yet. First you get Covid-19, with or without a history of prior emotional trauma, and then you get a bit concerned about not recovering immediately, or the lure of wall-to-wall Netflix gets too strong, and then..... Hocus Pocos.... by magic.... you have PoCoS.

I just heard this woman speak on New Zealand radio about the Australian response to Covid-19: WHO advisor and Professor of Epidemiology at the University of New South Wales, Mary-Louise McLaws. She mentioned the risk of Long Covid, specifically talking about how the risks to young adults, those...

This is a nice guide to dealing with feelings of despair and suicidality. I hope it reaches the doctors it needs to. It was good to see this - about BPS views of ME/CFS: I would like to comment on the paragraph about sleep though: Unrefreshing sleep is waking up feeling exhausted. In...

It's an interesting article, underlining how much more there is to find out. Counting the number of mitochondria in a cell is not even scratching the surface of the differences there might be between the cells of healthy and ill people. There's the shape of mitochondria, their location in the...

I would hope that everyone on the IACFS/ME board and the 'Fatigue' Editorial Board would be appalled at the publication of the LP paper, and be checking the Editorial Policy and criteria for the selection of peer reviewers, and putting the issue on the agenda of their next meetings. Surely it's...

This is the inclusion criteria for that study: It's a bit sad when the President of the International Association of CFS/ME is not requiring participants in his ME/CFS research to have PEM.

The study is mentioned here: General thread on functional disorders in Denmark

Posts about Clare Gerada in the media have been moved here: Clare Gerada: influence on UK medical practice and ME/CFS management Posts about Trisha Greenhalgh have been moved here: Trisha Greenhalgh on ME/CFS and Long Covid

That's a strong statement, and I had think a bit before deciding I agree. But no organisation that exists to help improve the understanding of ME/CFS could reasonably publish that paper. Their 2014 clinical primer is not an evidence based document and has not served people with ME/CFS well...

From the blog - might be useful.

Research project with $400,000 of funding in 2016. Led by Fred Friedberg, expected completion date May 2020. No results posted to date. Brief Summary:

From a tweet quoted in a post on another thread: @Dolphin

For those not aware, the journal 'Fatigue' is the journal of the International Association of CFS/ME (IACFS/ME). The board of that organisation includes prominent ME/CFS clinicians and researchers. The publication of the article looks to me very much like an 'own-goal'.

The argument that the organisation and the journal are different is weaker when Fred Friedburg is both the President of the organisation and Editor of the journal. Yes, publication of an article does not equate to official endorsement by the organisation or its Board. But presumably the Board...

I agree that pacing is behaviour, and that was exactly why I hesitated to make the point about the description of the conference. However, there is no need to frame the conference in this way. In listing 'biomedical, public health, and behavioural aspects of ME/CFS', what aspects of ME/CFS are...

@hope123, thank you for your responses, but you haven't specifically addressed the fact that the IACFS/ME's journal published a paper supporting the Lightning Process that was co-authored by Phil Parker. Have you read the thread of a member's account of undergoing the Lightning Process? If...

The IACFS/ME's journal is disappointing for a number of reasons: 1. Its main title is 'Fatigue'. That contributes to misunderstanding about ME/CFS, that the illness begins and ends with fatigue. Why wouldn't the journal of an ME/CFS organisation be about ME/CFS? 2. Its full title is...