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I might have missed it of course, but where is the patient involvement in the supervisory team? I mean, of course the joy of doing research on children is that it can be assumed that they don't know enough to warrant being involved in any way other than being data points, but where is at least...

As the twitter thread suggests, another outcome of less social contact was less colds and flus. I had fairly bad childhood asthma, and specific allergies would trigger it. But most of the times when I had serious attacks, respiratory infections were involved. I remember times pre-Covid-19...

I'm not sure about your numbers? From Tables 2 and 3, for total sleep time as determined by polysomnography: CBT: baseline 361.6, post-treatment 372.4 >> increase of nearly 11 minutes Relaxation therapy: baseline 342.2, post-treatment 337.9 >> decrease of 4 minutes Placebo treatment: baseline...

I have only read the article, but I thought it and the associated paper were interesting because: I had no idea that MS onset in childhood was not uncommon - anyone with a child with ME/CFS symptoms needs to ensure that MS is carefully ruled out It's interesting how fatigue is again identified...

Abstract In the present study we conduct a systematic review to evaluate the needs and experience of people with pediatric multiple sclerosis (MS) and their caregivers. The literature search was conducted across 10 academic databases, adhering to PRISMA-P guidelines. Quality appraisal was...

I've been quite annoyed with this study, with their use of minutes rather than hours of sleep time, so the fact that no one was getting a normal sleep time was difficult to see. And their charts with truncated axes, so you think tiny differences matter. Here's a chart of the data, with the x...

There's lots that is good about this study. But, surely the main objective outcome of a treatment for insomnia is greater sleep times? At baseline, the sleeplog (patient report, but multiple nights) and polysomnography (highly objective, but just one night) suggested that the participants were...

copying the link from the tweet above https://mg.co.za/africa/2021-02-28-living-with-long-covid-in-lagos/ I thought this was a terrific article, well worth a read. It dates back to February 2021. Well done to the author, Bolu Akindele.

A number of posts about an article 'Why Britain is now the capital of Long covid' have been moved: BPS attempts at psychologizing #LongCovid Edit: Some posts have been moved to: UK: TUC (Trades Union Congress): Long Covid at work surveys and reports 2021 onwards

https://www.manchestereveningnews.co.uk/news/greater-manchester-news/its-like-being-possessed-demon-18396486 It is fairly clear from this quote from June 2020 that Paul Garner knew what he was dealing with, was feeling optimistic about his own recovery and expected that most people would get...

https://blogs.bmj.com/bmj/2020/05/19/paul-garner-covid-19-and-fatigue-a-game-of-snakes-and-ladders/ Indeed, and as I said before, I do not understand how Paul Garner has come to hold his current views or his evangelism about sharing those views with the world. I do not share his views (ed.) or...

To me it looks as though he was well on his way to recovery when he was captured by the Norwegians with particular views. How would you have us demonstrate our empathy for Paul Garner? Paul Garner was uniquely well placed to make a positive difference to people with ME/CFS. He's benefited...

We have a thread on a 'blood cleaning' process that appears to be related to a Hamburg clinic offering treatments for ME/CFS and Long Covid: Nature - Chronic post-COVID-19 syndrome and chronic fatigue syndrome: Is there a role for extracorporeal apheresis?, 2021, Bornstein et al Here's a link...

Am I right in thinking that a test that involves going just a bit beyond ventilatory threshold on consecutive days would be enough though? I don't know what amount of exertion required to get to that point is for people at different levels of ME/CFS severities, but I suspect many of us have to...

Thanks for doing that @cassava7. That sounds encouraging, but to me, the very clear separation and the nature of the data continues to leave room for doubt. There is a conflict of interest in the clinic demonstrating that they provide a test that is essentially perfect in identifying people...

To be fair, the authors did identify some of the problems with their study: But, those limitations did not stop them deciding that the study 'seems to confirm' a role for the hands-on back whisperers in the abstract.

It's too easy to spot the problems with this one: No controls, open label, subjective outcomes, and the treatment approach was 'throw various things at the problem including drugs', making it easy to claim that the woo treatment created any reported benefits. This is part of the treatment:

I don't know. When I came to the city I am in now, I asked someone in the local ME/CFS support group who was a good doctor. I got a recommendation and went along when I had an ear infection. I told the doctor that she had been recommended by the group, thinking she might be pleased to have...

It's about, when the patient says, I have pain here, I am experiencing this or that, that the doctor believes that they are an accurate witness of their symptoms, until there's very good evidence otherwise. If they think the patient might be getting things wrong and they aren't actually feeling...

Excellent to see the use of biobanks for longitudinal research. It seems like a nice study. I thought this was interesting. They compared nearly 400 people who had had Covid-19 with nearly 400 who had not - that's a big sample. But, if they just relied on the comparison at that single...