I participated in this study and very much agree with Brian Vastag's opinions here. Thank you for participating and speaking out about this...
Dr. Walitt was definitely there for both of my study visits (November 2018 and April 2019). I have great respect for him and felt truly cared for...
This is only the first step. From my conversations while participating in the study as a patient, as long as they find useful data, they would try...
The NIH is many people and many groups. I don't think we can lump them all together saying "they" want to or don't want to help. From my...
I am pretty sure Dr. Walitt goes over all of these numbers, including how many did not respond after being invited, in his talk at the ME/CFS...
I just joined this forum and am the author of those two articles linked to above. I would be glad to answer any questions anyone may have.
Yes, I only did the assessment once and mentioned my concerns once. It was taken care of as swiftly as possible, and it's really not that easy to...
This is exactly why I felt like I needed to tell patients about this experience. I know many doubt the NIH's true intentions, but the NIH is not...
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