It's more about fear of PEM. Many patients avoid activity (and therefore PEM). To be diagnosed with ME/CFS you have to have PEM, so if you never...
The argument is based on simple logic. If a patient avoids all exercise, they have no way of knowing if they are able to do it.
Yes, people with PEM avoid exercise. However PEM varies over time and is not fixed. A certain amount of avoidance is sensible, but too much is...
When I say undeniable, what I mean is patients saying that they deliberately avoided exercise, or deliberately avoided getting out of bed, because...
No, and I didn't say that. The research is primarily for pain, and in that case yes there is good evidence that fear, stress, and expectation...
Well, as pointed out in my comment above, there is evidence that these things can perpetuate the illness. Sure, we can discuss the quality of the...
Let me be crystal clear: I am definitely not saying that all patients have a fear of activity. Of course they don't, and that would be a...
Here are some relevant studies: https://www.sciencedirect.com/science/article/abs/pii/S002239999800021X...
Yes, and I have always done that here, as you can see from my posts. I don't reference every single thing I say, as you don't either. If there is...
Yes.
I think you have a number of misconceptions here. These programmes aren't saying random things about the brain. They are based on proven...
Because patients are saying it all the time. I'd prefer not to point out individuals, but if you look you will see it is true, and I can certainly...
I agree with all your points.
Actually, this is not true (and I've given detailed and logical reasons why) and is not the opinion of the wider scientific community. It's a...
No, it's not true that they can't provide "any useful information". As I said, with appropriate methodology, bias can be minimized, and you can...
The article gives references to the current state of pain neuroscience in the first four paragraphs. How exactly is the study not consistent with...
Yes, I agree the placebo is terrible in this case. I agree with another poster that it should be a different psychological treatment, perhaps...
Have you looked at the neuroscience?
Sorry, there are a lot of replies and I don't really have time or motivation to go through them all. I'm aware of the issues. The point is that...
No, I've never said any of that. It just sounds like a strawman. Please don't assume I'm not intimitely familiar with the illness (I am). This is...
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