I don't really see a lot of point in ME/CFS and Long covid specialists at this point if they aren't doing research. Your local GP could be...
It really highlights how good people can ultimately be forced into treating patients badly and endangering them with systemic choices they have...
If they admit that isn't true they also have to admit to 80 years of mistreatment that led to having no clue what to do with the mass of people...
Management of ME is basically "stop living and just exist". Unable to work, see anything, do anything etc etc its hardly any form of life. If they...
He is just wrong. Reductions in VO2 max have been found in the first CPET on ME patients and a subsequent reduction on the next day has been shown...
My concern is also that the more severe patients are the ones more likely to be suffering from severe and common co morbidities as well. The...
Way too high. When I was severe even with it counting my arm movements I rarely got above 100.
Other than the already 7.5% of the population who have long covid and all the dead. Its insane really to be dismissing something as over that is...
Is this actually proven science? People talk about it like its the case but so many examples of this have actually resulted in being biological...
The big problem with continuing to fund these Psychology based doctors is they continue doing it to ever more people. Most of my condition was...
Huh all I need is a water feature in my back garden and I'll be cured?!
I wouldn't mind if I got a psychological diagnosis if the treatment actually worked, but it doesn't. Its a useless diagnosis to provide especially...
Wounds leave scars, in my experience mentally too. Not one of the horrific events in my life has done anything but leave bad memories my brain...
As far as I can tell doctors don't change their opinion on these sorts of things over their careers for the most part. Like 95% of people out in...
Right at the beginning of the outbreak I had a look through the 3 ME/CFS papers from China around the SARS outbreak. They had about 50% of all...
I have a friend who is a union rep, they are seeing a lot of people struggling at the moment with brain fog. Last year one person uttered the...
If there was going to be one change that might save some lifes and disability its actually getting doctors to accept that these conditions are...
Its an interesting video but alas if any of this is the root cause its not a hopeful outcome really. If the pituitary gland is under producing due...
Rehabilitation is just a euphemism for exercise and CBT and relies on the BPS model. Not surprisingly its failing Long haulers too and I wonder...
I had some hair loss initially and rapid onset of greying afterwards. It is part of the early disease I suspect, its not well documented though I...
Separate names with a comma.
