I dislike how living with Covid has become doing absolutely nothing different at all, rather than adapting to and allowing those vulnerable to it...
Is notable that still no one is managing to reach the severe patients to assess their condition. They obviously can't be coming into clinics for...
Its only really something of value if you find yourself in hospital for ME symptoms and they aren't treating you within the guidelines. At which...
Water intake does very little for me. Electrolytes help a little bit but just water does nothing.
That sounds like a push, Biden has with his actions has shown he is really unhappy with the NIH and CDC in regards to Long Covid and the creation...
I am sure not treating people is cheap for the NHS, I am not so sure its cheap for society given about 1 in 6 people need drugs and medical care....
The harm is a permenant worsening of symptoms, after the crash from exercise I never recovered to that baseline again. Before treatment I mostly...
We are just one patient and we are swimming against their training, decades of experience and papers they have read and in this case the...
Walking is good for the back but its using the muscles, standing on the other hand in the same spot in my experience is kind of uncomfortable. The...
There is this giant gap between those that can go to a GP and those that are carried into Emergency care with an ambulance. In the middle is...
I don't really see the point of the Long Covid clinics, or the ME/CFS ones. We have no good diagnostic, we have no treatment the money spent on...
I really don't want to see that. CPET's cause significant harm to the patient and could be making them permanently worse, inducing 2 crashes...
This is a 1 in 1000 doctor who actually pays attention and realises that obesity doesn't result in degradation of a patient in a few weeks. That...
Also after you have seen literally 100 different people who have all gaslit you its very hard to keep saying move on. Its completely systemic and...
50+ age group only alongside those classified clinically vulnerable by the JVCI, ME/CFS patients weren't included in that before so I doubt they...
That is not enough people to approve for a population release. I know full well they didn't try it on severe long haulers or ME/CFS sufferers or...
I roll over in bed I raise my heart rate by 15 beats. That is an impossible target to meet for anyone with any amount of orthostatic intolerance...
I went through a few different masks before I found something I could make easy to fit. I needed a stronger metal strip in the in nose area and...
And yet The disconnect on understanding how little people can do on normal household living and yet they are throwing in increasing exercise as...
Indeed it took a lot of patient protesting to undo the damage that the PACE study did and expose its flaws, to get people such as yourself on a...
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