No its not a joke unfortunately its a very real portrayal of the NHS. When we talk about systemic prejudice in the NHS this is one part of it. One...
I watch Philosophy tube and the trans lady who makes the channel recently put out a video about how difficult it is to get gender reassignment in...
At least there is a control but it needs to be sham, its lacking blinded impacted. This really shouldn't pass ethical standards at all after what...
Can't bring themselves to say it has PEM which is one of the defining features. More heavy leaning on the psychology which is far from the main...
No mention of PEM despite it being the primary symptom, they are even misrepresenting the WHO. More Psychosomatic blaming nonsense. This is...
What I think is horrifying about the chronic pain community is that we have many effective drugs that can ease them of their pain. Unlike ME/CFS...
Two fell out of the study out of 16, 12.5% loss potentially made much worse. 5 saw no improvement at all, none of the rest showed any significant...
They still can't help putting unproven psychology on the page though Also is brain fog really "fatigue", its not its another symptom. No...
Its just fraud all the way through. Psychology findings of all types, medical and society wide rarely survive even 10 years before they are shown...
All the studies say they are not would telling it directly to a nurse even matter? Unless someone turns up capable of medically doing something,...
I tried to chase down with the OMF, NIH and British Brain bank to see if I could register my body for use in ME/CFS research, I spent weeks trying...
Full trials for any of the existing potential biomarkers. Trials to ensure its accurate and correlates well to disease severity and distinguishes...
When it comes to Covid 19 and especially Long Covid Anxiety also refers to a racing heart beat, which has an anxious uncertain feeling about it...
Melatonin is used by lots of ME/CFS patients and frankly it does nothing other than help get rid of the insomnia and allow people to get to sleep...
With these numbers Pace 2.0 for Long Covid is probably going to have to use a similar strategy but with a bigger spread, 45 counts as recovered...
If any software developer had failed to look into a bug in the same way doctors have looked into my medical condition I would have fired them, I...
This precisely the short focused trials on recommended supplements we need. Also using a control is critical because of that last point, seeing an...
Post moved from the Long Covid in the media thread. I guess I have another place to look for horrific prejudice, yay sounds like an afternoon....
Same is true for ME/CFS for most pension schemes, has been for a long time. A union friend of mine has been dealing with one such person this past...
Can't help but think the reduced distress might be because finally someone accepted they were ill. There are likely many ME/CFS patients that have...
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