For anyone else who did a double take, "drug consumption" (consumo de fármacos) might be better translated as "medication use".
If someone uses the laboratory where they work to experiment on themselves, I wonder who pays for it. Did she work out of hours and buy her own...
And having said all that, the genetic testing may not give a clear answer. People sometimes find out that they have a variant of unknown...
Yes, that is a good idea. I saw the FSHD study and clicked through to the website. What a valuable service to patients and research. There seems...
@wigglethemouse , it is complicated, isn't it. I'm sorry to hear that your family member never got their data or a refund. I think the...
@Kitty , thank you for the thoughtful reply. I joined a couple of support groups on Facebook (my daughter doesn't have a Facebook account because...
My daughter is waiting to see a neurologist to find out whether she has a particular genetic condition called myotonia congenita. It seems likely...
My daughter has one of the recently described kinds: hypertensive-type OCHOS. It's a bit different to classical OI, in which not enough blood gets...
It was mentioned in this thread about compiling a list of medications that could increase cerebral blood flow for future study. My daughter...
We're not allowed to read the NICE website from outside the UK. Do the guidelines only recommend blood tests, or did the study only look at blood...
This 2024 study looked at three methods of CO rebreathing and found discrepancies: Duplicate measures of hemoglobin mass within an hour:...
Different angle of dicussion: We know that blood volume decreases when activity levels decrease. How could researchers distinguish between...
Hmm, I thought that the recent articles that I have read found that healthy controls had a decrease in cerebral blood flow of less than 10%, and...
@EndME , the first (?) article describing POTS in what you might call the modern era was focused on idiopathic hypovolemia rather than orthostatic...
Article about CO rebreathing: Validation of a clinically applicable device for fast and accurate quantification of blood volume...
Apologies. Have fixed this. Thank you for pointing it out.
This is why the 30BPM increase is only one part of the diagnostic criteria. The patient also has to be symptomatic: chronic OI symptoms of more...
Complete guess on my part: The researchers included male controls even though there weren't any male subjects because they were interested in...
I don't think there is any good data on the male/female make-up of POTS patients, but this survey (which obviously suffers from being a survey,...
It is touched on in the paper at several points – I am not scientifically literate enough to comment on what is said about it. They compare...
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